I have ET (CALR) and POTS.
Each of us has different ailments but I take magnesium, Vit C and D3.
Small, more frequent, well-balanced lower carb meals.
Mediterranean Diet was recommended.

I also need extra hydration so I take sugar free Liquid IV - it’s a powder you add to water. There are other brands, too. You might not need this! Ask.

I’m supposed to exercise more, but my POTS causes irregular heartbeats and blood pressure, wobbly legs and short of breath so I do some chair yoga and “bed” exercises.

My local hospital has a dietitian in the cancer center and made many of these recommendations.

I first brought a long list of questions to my hemonc but now it’s a short list.

When we have ET, our blood marrow produces excessive and misshapen platelets. In most cases, this happens when a protein controlling platelet production mutates.

It would be wonderful if eating grapes could reverse that mutation. And who knows? Maybe at some point an effective alternative to medication will be found.

But right now, what works is taking the medicine prescribed by our oncologists. This keeps us alive by protecting against blood clots and strokes. It safeguards our blood marrow. It relieves the fatigue and headaches experienced when ET is uncontrolled.

Eat as well as you can, exercise as much as you can, take your pills, stay strong!

Hi @tinah07,
I had ET for 16 years was on Anagralide for that time. Had a Bone Marrow test and now on Hydrae since 2nd Jan this year. Did not have any side effects with Anagralide and so far none with Hydrae. Also Diabetes for 20 years. Eat well and exercise, not as much as I should though. Hope that helps.