6 Different Back pain problems.
I have found out recently that i have 6 different painful problems with my back.
1) Lumbar Spondylosis. 2) Lumbar Facet Arthropathy. 3)Neuroforaminal Stenosis of Lumbar Spine. 4) Lumbar Degenerative Disc Disease. 5) Tarlov Cyst. 6) Saddle Anesthesia. 🔽 This one i'm seeing a Neurosurgeon in April to do a test run with the generator and wires to see if it helps with the pain in my back, buttocks, front and back of legs down to both feet. Any thoughts would be helpful.
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Don't give up hope and move around as much as you can. I am taking bone medications (Tymlos and Reclast), horrible stuff but it WORKS to strengthen those bones. I also started bioidentical HRT and they now say women of any age can start it. I am sure that will also be helpful to rebuild my bones. Hang in there @maxiesmom . 🙏🏼
Oh friend, my heart truly goes out to you. As someone who's navigated chronic back pain, I understand how overwhelming it can feel to have multiple diagnoses stacking up like that. The way you're advocating for yourself by pursuing that neurostimulator trial is incredibly brave - that's a big step!
While I'm not a medical professional, I can share what's helped me through flare-ups: My FAR infrared heating pad has been a game-changer. Unlike regular heating pads that just warm the surface, the deep-penetrating infrared heat helps me with muscle spasms and stiffness from my SI joints to my sciatic pathways. It's become part of my daily maintenance routine - 20 minutes while reading morning emails seems to "prep" my nervous system for the day. (Just remember to keep it on medium setting over areas with nerve involvement!)
Of course this isn't a solution, but it might offer some comfort while you're waiting for your April procedure. Have you discussed thermal therapy options with your pain management team? Wishing you measurable relief from the trial and good partnership with your neurosurgeon. However this goes, please know there's someone out here who truly understands that "multiple diagnoses" grind. You're not alone.
@lindag65, thank you for the kind words. i don't have a pain management team. but i will look into the FAR infrared heating pad. anything good to help. really appreciate the advice.
Did you develop scar tissue around your nerves from your surgeries?
I don't think so. There are scars on my hips but they shrink from 9" to 4.5" and they are white so you don't notice them. On my cervical (neck) front you can't see the scar at all! On the back, there was a super huge surgery and the spine sits very deep. So I go for Myofascial release therapy and it's softened over time. (it's still pretty new at a year and a half. On my lumbar spine there is NO scar tissue from the 2 or 3 incisions and there never has been. Just the incision line. After several years, "scars" go away. If scar tissue forms, there is stuff that can be done about it. You could never know I had spine surgery if you look at me from the front! I put on vitamin E and I think C for a bit and stayed out of the sun until they healed. I have nerve issues but they come from impinged nerve roots in my spinal canal - not from any scars I have sustained.
@danny5 Good luck convincing the surgeon you have the Saddle Anesthesia; my surgeon wouldn't get me out of the wheelchair just said I didn't have it or the pain that radiated from my sacrum to my testicles. He said there's nothing wrong recommending I have a stimulator put in come to find out its a failed back surgery but unfortunately no one else is willing to fix the loose screw. I finally gave in to a spine stimulator it was wonderful until I bent to soon and moved the leads. the stimulator took care of 95% of my pain the anal, testicle, nerves in my legs, it even helped my neck pain. I'm going to see a new Neurosurgeon Tuesday about putting the stimulator with paddles in, hopefully they can reuse the Boston Scientific Stimulator and just replace the wires
@sbtheplumber1 , i'm not sure, but i think they're going to use the one with the paddles. i'll find out on April 10th from the surgeon who is doing the procedure. good luck to you too.
@danny5 they told me the paddles are anchored better than the leads. They supposedly have to cut my back open more to put the paddles in compared to the leads. I was trying to deal with the pain until I talk to the surgeon Tuesday then they called today to reschedule for the 25th Ugg another week.
@sbtheplumber1 , that's better than me. i just see the surgeon on 4/10. than plan on the test run than. no idea about the actual surgery. 🤦♂️🤷♂️
What is the name of the new pain medication approved by the FDA?
Where did you read about it? Thx.