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I frequently see people with Crohn's disease who also have been diagnosed with PMR. Have you been ruled out for spondyloarthritis associated with Crohns?
Spondyloarthropathies have symptoms very similar to PMR. Nothing says you can't have PMR and spondyloarthritis together with Crohns.
https://www.jrheum.org/content/93/21
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I have both spondyloarthritis and PMR but not inflammatory bowel disease. I was blessed with uveitis instead of IBD.
https://pmc.ncbi.nlm.nih.gov/articles/PMC7488890/#:~:text=Uveitis%20is%20the%20most%20frequent,of%20pain%20and%20blurred%20vision.
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How much Prednisone are you needing? I needed higher doses of Prednisone for a very long time. I had BP's as high as 210/110 when I was on higher doses of prednisone.
As far as opioids are concerned ... I give Prednisone credit for me not being addicted to opioids.
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I’m completely asymptomatic on 10 mgs of pred.
I’m sensitive to it and need less that most folks. But I’ve been trying to taper for a year and the PMR is worse than ever on 4.5 mgs. So I’m going back up.
I’m just terrified of the pred side effects. The weight gain, increased blood pressure, etc.
I have had spondyloarthritis most of my life but my PMR symptoms are different; much worse.