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How does the treatment team come together?

Prostate Cancer | Last Active: 53 minutes ago | Replies (10)

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@hmishkind

I fully understand your frustration. My prostate biopsy pre surgery showed a Gleason 8 and the PSMA pet scan showed no detectable disease outside the prostate. I went back and forth at Mayo in Phoenix on my treatment options and not one really helped guide me one way or another other than indicating that the cancer was within the prostate so I opted for RP. Biopsy from the surgery showed I have a Gleason 9 Grade 5 with spread outside the prostate. I now with I had done radiation first but this whole process is frustrating and inexact to say the least. Now I have to wait to heal from my surgery before someone can tell me, I guy that does not produce high levels of PSA even in the face of Prostate Cancer pre op what to do next. I wish the doctors would be willing to be more proactive and help me plan for my future or at lease be realistic with me on my options and potential outcome but no one wants to go outside their stated protocol.

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Replies to "I fully understand your frustration. My prostate biopsy pre surgery showed a Gleason 8 and the..."

Hmish, you did the right thing, confusing as it seems. If you had an SBRT type of treatment (5sessions) because you “thought” it was confined to the gland, and now you know it isn’t, what would you have done?
Radiation would not be an option since you’d have already had it!
Similarly for EBRT, they might not have not targeted your pelvic nodes since PSMA was clear. So the surgery (horrible as it is) revealed undiagnosed cancer OUTSIDE the gland and now it CAN be treated with radiation and ADT.
From my standpoint, with your Gleason score, you had the BEST primary treatment and now the mop-up will hopefully take care of the rest.
I would think that your oncologist would keep you on ADT for longer than 6 mos but that’s just a layman’s opinion.
All this means is that treatment is going to take longer than you anticipated but I think you’re on the right path to an excellent result.
Phil