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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 5 days ago | Replies (849)Comment receiving replies
Replies to "Hi all - I am not replying to anyone in particular - can someone tell me..."
Eat smaller meals--try a smoothie (e.g. puree blueberries or strawberries (or other fruits) or even avocado, with something healthy like low fat dairy (yogurt, plant-based milk, orange juice, etc.) mid morning (10:30 am or so?). Light lunch with lots of salad fixings (avoid salt) use olive oil for dressing and--keep dinner light (avoid salt, sugar, flour, and oil, such as pastas, breads, fried stuff, cream sauces, etc. ( lightly steamed broccoli, brussel sprouts, cauliflower, cabbage) are very healthy, along with baked or grilled chicken or salmon. if you're still hungry before bedtime, have some a small smoothie (above) or a little oatmeal with berries or honey. This just might help with shortness of breath (SOB). Personally, and surprisingly, I also found that the more I walk or bike or swim, the fewer SOB episodes and papitations I have! I'm not a doctor--just another HCM patient.
Hello @joycehocm,
Thank you for sharing that information. How often will you be monitored on this protocol?
In order to not reply to a post, I think all you need to do is instead of hitting the blue "reply" button at the bottom of a post, scroll a little further down and there is a "Comment" box. This is where you can post away without replying to another members post.
I'm glad to hear you are feeling so good, and surgery and Camzyos are on hold for now!