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DiscussionAnyone have intermediate Macular Degeneration
Eye Conditions | Last Active: May 5 8:15am | Replies (103)Comment receiving replies
Replies to "I would be interested to know how many females are diagnosed with AMD are also on..."
Also, I was reading about eye drops that may replace injections. My retina specialist has heard of them. I hope I remain mild, intermediate, and dry forever. Or at least long enough to benefit from some of the newer treatments headed our way.
I reread your above post regarding 23 and me. That one is a swab that is mailed away, correct?
You are 75, have had intermediate AMD for at least 10 years? And did not have it in your 50's. If you were diagnosed at 65 with intermediate AMD, how old were you when you were diagnosed with early stage AMD? Is 65 years old the age in which you became aware of the AMD for the first time? I'm just curious if you were getting regular dilated eye exams in your 50s and even younger.
I'm just trying to fit all of this new info into my brain and make sense of it.
My mother had dry AMD which deteriorated very quickly from her diagnosis at age 68. She lived until she was 90, by which time she was suffering from daily hallucinations caused by the AMD related Charles Bonnet Syndrome. I think your doctor's recommendation of HRT may be the very best step you can make, given there is no cure and you want to do everything you can to slow its progression. I know most doctors would not even contemplate prescribing HRT to any women over 60, but that is largely because of the catastrophically misinterpreted Womens Health Initiative report which denied several generations of women access to HRT. I have recently been prescribed HRT for osteoporosis - despite the fact it is now 25 years since I became menopausal (at 41). My doctor admitted that to some degree its unchartered territory so far out from menopause (because all reserach on over 60s stopped after WHI) , but whatever risks there may be, my experience 2 months in is that HRT has already significantly lifted my mood, and noticably improved a range of health conditions I have been struggling with for decades - from over active bladder to severe insomnia. What it will do for my bones remains to be seen.
I am going to reply to everything soon. I do want to ask where you live, state? I've been to the John's Hopkins Wilmer eye institute last August. It is the opthalmologists there who told me I have decades before this will affect me. Now, my 2nd retina specialist says the same thing. I live in Maryland just outside of Baltimore. I would love to visit the Bascom Palmer Eye Institute in Miami Florida. I'm trying to work it out.
Also, the Photobiomodulation (red light therapy) was FDA approved in November 2024. My specialist is not getting a machine but he thinks Hopkins may. He says the results are not plentiful, for a lack of another word, for him to invest in at this time.
Also, were you ever diagnosed with early Macular Degeneration or have you only known for the 10 years of intermediate MD?