← Return to HCM-ers: Introduce yourself or just say hi

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@karukgirl

Hello there Leo @ochmnot22, and a warm welcome to Mayo Clinic Connect!
I am so glad you found this site. You will find a lot of information from other people with HOCM on here, and learn you are not alone. That is such a great feeling, because like you said, you don't know anyone else with this condition.
You mention you were diagnosed two years ago...were you diagnosed right away, or did it take time to find the correct diagnosis?
Are you an active person? How has having HOCM affected your lifestyle?

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Replies to "Hello there Leo @ochmnot22, and a warm welcome to Mayo Clinic Connect! I am so glad..."

Hi @karukgirl. Thanks for the warm welcome. I am hooked on the information here and just snowballing into other resources. In the year leading up to that I was feeling dizziness and syncope a few times momentarily. I had done a gall stone removal surgery a few weeks before that (Sept 2022) and was feeling great. I was back exercising and losing weight, doing intermittent fasting. Christmas day I did heavy cardio. Boxing day, I woke up feeling light headed, dizzy, faint, nervous- just couldn't relax. At the hospital my BP was very high and couldn't settle down. They called Cardiologist and that's where it all started. I had a high CK level and diagnosed with Rhabdomyolysis and had to return the next day to flush this out the blood since it didn't wash through sufficiently. That week, I went through a lot. In the end I did stress test on cardio, 24hrs & 1 week monitor, ECG, EKG, MRI, Blood test. I did feel scary palpitations a few times in the weeks after this however, this might be related to stress. I was away from the UK at the time. I was put on medication. I was then passed to a more specialist hospital and the entire process restarted. I had to return to the UK. Once I was here I had to again do over everything followed by genetic testing- that's 3 times doing the same diagnoses. After 9 months I went for check up- I think 1 week monitor and some scans. I should be back in a few months. I only get dizzy but I think that's because of bisoprolol in the morning. I do get tired during the week and after a long back and forth I have negotiated working 1 day/ week from home. I think I need to change career so I don't need to go out to work 5 days/week. I haven't had any palpitations since I returned to the UK. The only time I had palpitations was when I tested + for COVID in Nov 2024.