← Return to My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Discussion

My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Blood Cancers & Disorders | Last Active: Feb 19 9:45am | Replies (36)
Comment receiving replies
@albertedward

Hi sorry you havePV.I have had it for a few years and was taking hydroxyurea and increasing the dose every months and then no longer needed blood drops.Then things balanced out for a year and then they put me on Jakifi and it is working well.
For how long is anybody guess .But the good news is we are here and still going.Keep up the work and listened to the Doc.Bless you and your family as they help you.

Jump to this post

Replies to "Hi sorry you havePV.I have had it for a few years and was taking hydroxyurea and..."
nypara66 | @nypara66 | Feb 14 6:55am

Hello I have PV Just over two years. I’m doing well so far on Hydroxyurea with a phlebotomy every few months. My question is, Did you get put on Besremi first before Jakafi? I was having issues and my oncologist said Jakafi is the third, last choice? Maybe it depends if you have other health conditions? I was freaking out because Besremi is super expensive, many side effects and also just came out in 2019. I didn’t research Jakafi. Glad it’s working for you!

VIEW AND REPLY