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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (930)Comment receiving replies
Good evening everyone. I am Leo from London. I was diagnosed with OHCM at 38 years old over 2 years now (hereditary but no history of diagnosis or SD in family). I am so pleased to learn of this group and looking to be apart of it. I have done a lot of reading don't know anyone else with the condition.
Replies to "Good evening everyone. I am Leo from London. I was diagnosed with OHCM at 38 years..."
Good evening Leo! So glad you found this site. As a HOCM patient you need to have other relatives get echocardiograms to see who else in your family has this hereditary disease. Adults who are negative need to be tested every 5 years. Kids under 18 need to be tested every year. Nobody knows when they will show signs of being positive for HCM.
I was 67 when I was diagnosed, but my breathing was labored for many years and was miss diagnosed as being an asthmatic. My Father was miss diagnosed with labored breathing and it was blamed on cigarette smoking.
Please have all of your relatives tested for HCM. Once I was diagnosed, other relatives have also been diagnosed.
Best to You!!
Jim
Leo,
HOCM or HCM can be at any age. I would suggest that you try to find out who in your family has this heart disease and get tested with an Echocardiogram.
Jim
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Hello there Leo @ochmnot22, and a warm welcome to Mayo Clinic Connect!
I am so glad you found this site. You will find a lot of information from other people with HOCM on here, and learn you are not alone. That is such a great feeling, because like you said, you don't know anyone else with this condition.
You mention you were diagnosed two years ago...were you diagnosed right away, or did it take time to find the correct diagnosis?
Are you an active person? How has having HOCM affected your lifestyle?