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Does anyone take Tegritol for burning mouth syndrome?

Skin Health | Last Active: 5 days ago | Replies (25)

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@mediaman

Mylate mother used tegretol for TRIGEMINAL NEURALGIA. It may well be that it is not your mouth that is burning, it is the trigeminal nerve of which there are two, one on each side of the face. The nerve runs from the braid kind of behind the ear down through the cheek. It hurts severely,m paid 10 on a scale of 10 when you get episode of trigeminal neuralgia. You maybe want to see a neurologist about "burning mouth". My mother was able to obtain long term relief after years of suffering with a neurosurgeon who used focused beam radiation, one time on each side, to "break" the stem of the nerve. She had the done twice. The first time it lasted 10 years of relief.

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Replies to "Mylate mother used tegretol for TRIGEMINAL NEURALGIA. It may well be that it is not your..."

My dentist, doctor, and neurologist thought my burning mouth was the trigmenial nerve. I tried many things. After 3 plus years I got an esophagus scope and was diagnosed with gastritis with hyperplasia, reflux of acid and bile, and Barrett’s esophagus. The gastritis and reflux and esophagus damage has been causing my burning mouth. I am taking Nexium 40 mg twice daily, sucralfate liquid 10 ml 1hr before meals and at bedtime and baclofen 5 mg 3 times during day and once at bedtime. Healing has been slow. Good 30 days before I noticed sucralfate liquid stopped burning for a few hours. After 60 days burning was down enough I could stop pregabalin and pain pills. Now burning might. Real thru during day I chew pepsid ac complete which stops that burning pretty quickly. Reflux treatment is working for me. Sucralfate coating the esophagus and stomach is really important in getting burning relief. Hope this helps you.