1. < Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

BMT at Mayo AZ — What should we know to prepare for transplant?

Posted by redheadelephant @redheadelephant, Dec 22, 2024

Hi! My mom will is have a bone marrow transplant at the AZ location. We had to switch from another center where we knew the rules/what you could bring and what you could not. We have not received similar information from Mayo and I thought I’d come here and ask.

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

katgob | @katgob | Jan 29 8:39pm
In reply to @rv10 "Things are progressing per the plan. Melphalan and Cytoxan were my problem child’s. Fever and the..." + (show)
@rv10

Things are progressing per the plan. Melphalan and Cytoxan were my problem child’s. Fever and the usual diarrhea. Once they ruled out cdiff, the meds are working well to put me back on track. Follow there instructions on freezing your mouth. I’ve not had any mouth sores yet. Hint: there is a Rita’s Italian Ice at Bell and Tatum.

I’ve not found parking to be an issue. It really depends on which of the buildings you are going to. I’ve never had to park in any of the north side lots. They have golf cart shuttles if you do.

Jump to this post

I never had a single problem in my mouth after freezing it up. Down the road i used the mouthwash they had me use in the hospital. To keep moisture in. Biotine I think it is called.
I got the cup of ice and popsicles. I was in the hospital 25 days. Anything works to keep your mouth frozen and the Melphalan and Cytoxan out.
rv10- It is good to hear the transplant team is right there. Please keep us informed and updated. I am day 294 past transplant and feel really good. Water, exercise and eating good. Today, a little too many sweets..... I made pumpkin/Choc Chip muffins. Yum.

REPLY
Mentor
Lori, Volunteer Mentor | @loribmt | Feb 13 1:42pm

Hi @redheadedelephant, It’s been about a month and a half since your mum had her transplant. I hope everything went well for her and she’s starting to feel a little more perky! How is she doing?

REPLY
Mentor
Lori, Volunteer Mentor | @loribmt | Feb 13 1:46pm
In reply to @rv10 "Things are progressing per the plan. Melphalan and Cytoxan were my problem child’s. Fever and the..." + (show)
@rv10

Things are progressing per the plan. Melphalan and Cytoxan were my problem child’s. Fever and the usual diarrhea. Once they ruled out cdiff, the meds are working well to put me back on track. Follow there instructions on freezing your mouth. I’ve not had any mouth sores yet. Hint: there is a Rita’s Italian Ice at Bell and Tatum.

I’ve not found parking to be an issue. It really depends on which of the buildings you are going to. I’ve never had to park in any of the north side lots. They have golf cart shuttles if you do.

Jump to this post

Hi @rv10. It’s been a little over a month since your BMT transplant and time to check in with you. How’s it going?

REPLY
View MoreView Less
Please sign in or register to post a reply.