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Helpful tips on medication for fibromyalgia.

Fibromyalgia | Last Active: 5 days ago | Replies (23)

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@nancyeburford

Well not really sure this is my diagnosis as everything they have tested me for is negative. They want to put me on low dose naltrexone. Anyone on this ?

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Replies to "Well not really sure this is my diagnosis as everything they have tested me for is..."

I was on low dose Naltrexone and didn't find any relief from my symptoms. However that doesn't mean it won't work for you. I have had Fibromyalgia for 26 years along with Chronic Fatigue and Cossacki B enterovirus and I have been on 600 mg. of Gabapentin since my diagnosis. I would love to get off the Gabapentin but I am afraid the Fibromyalgia will come back with a vengeance. I also tried Lyrica and one of the other med's for Fibromyalgia and they didn't help with my pain.

I was diagnosed with Fibromyalgia three years ago. I am trying low dose Naltrexone. You start on a low dose of .5mg and work your way up to 3-4mg. I tried it twice before but discontinued it after a few weeks each time because I thought it was making my insomnia worse.

I am giving it a third try and this time it's working better. It might be because I'm not in a flare right now. Right now I'm at 1.5mg a day. I am sleeping better too but don't know if it's because of the LDN or not.

It's certainly worth a try. As far as I know it doesn't have to be tapered if you want to stop taking it. The only downside is that it's not covered by insurance and you have to get it from a compounding pharmacy since it's not available in low doses at a regular pharmacy. My pharmacy charged me $60 for 75 pills at the .5mg dose.