@health95
thanks for the update. My numbers fluctuate a bit but they haven't changed that much in three years since my diagnosis. My oncologist/hematologist always says the same thing. "I'll see you again in six months, (started with quarterly) but this is MGUS. Remember if it should drift into numbers that indicate multiple myeloma it is very treatable."
I can live with that.
You can't really pin him down as to what numbers would be concerning to him but I think that varies from patient to patient. They look at what coexisting conditions you might have and evaluate risk by your age, general health and stamina in addition to your lab analysis and body scans (do ask about those).
I know a lot of of our members have gotten a bone marrow biopsy on the front end of their diagnosis. I opted not to do that after looking at the data and talking to my physician. Many are taking a more conservative approach to bone marrow biopsies and my physician and I agreed that if my numbers started spiraling I would get one. So I think your doctor is thinking along the same lines but if that's concerning to you have another discussion with him or her. No invasive procedure comes without risk although having read about the bone marrow biopsy, it seems as though the risk is low.
I think it's concerning to many patients that there is no treatment for MGUS at least initially. I look at it this way… I get the best medical preventative care of anybody that I know and I don't have to suffer a chemical intervention at this juncture. I may in the future, but for right now I'm living my life and enjoying my friends and family post and hope to continue to do so for the rest of my life.
Are you feeling less stress about the diagnosis?