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Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (39)

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@kayabbott

I've had MGUS for 8 years and my early K/L ratios were similar to yours, not far from baseline. They started ramping up about 3 years ago and my Kappa is now about 300 and Kappa/Lambda ~28. They still go up and down a bit, but my oncologist told me that I'm fine until my Kappa is in the thousands (hopefully that is the scientist and not the mother hen speaking). I had a baseline BMB 8 years ago and my deranged plasma cells were ~5%; the BMB last summer had 15%, which technically is SMM level, but plasma cells are sticky and clump together, and I have no symptoms from MGUS, so he still has me at MGUS. Even at my level, the chance of it morphing to MM is still low.

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Replies to "I've had MGUS for 8 years and my early K/L ratios were similar to yours, not..."

Thanks for your input. Much appreciated.

Just to make sure that I understand, your K is 300 and your L is 28? Or is your L -28? I've never read of an L at a minus number, so I'm not sure if I misread.

Regardless, be an active participant in your own treatment.

Be well.