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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: 2 days ago | Replies (556)Comment receiving replies
Hi Joe,
You and your wife have made such a good adjustment. It’s inspiring! What you suggested makes a lot of sense. I think, on some level, we’re still adjusting to his DX. I’d like to have a dialogue about our future but Stan isn’t ready yet. I have booked an appointment with a neuropsychologist but could not get an appointment sooner than March. I tried three different people,March for all f them. Thank you for taking the time to write and sharing your wisdom.
Replies to "Hi Joe, You and your wife have made such a good adjustment. It’s inspiring! What you..."
Yes, it took my wife over a year to adjust to her diagnosis. She wrote poetry to sort through her feelings. My adjustment was easier having shared my wife's experience.
You mentioned your husband is seeing a neuropsychologist which will help in adjusting to his diagnosis. If he has seen a neurologist who is also a movement disorder specialist for medical guidance then he should be fine but if not he would benefit from this type of specialist.
Best wishes
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So good to hear from you again, @janetgeller9. The plans you have are good. This is a difficult diagnosis and I can understand being overwhelmed. Keep learning all you can.
The Davis Phinney Foundation has many teaching videos regarding PD. Some of these videos are by professionals and many by PD patients, some of whom are also PD patients. I would encourage you to view the videos. It will give you a good background for dealing with this unwelcome disease. (https://davisphinneyfoundation.org/webinars/).
The organization also has a YouTube channel with webinars, https://www.youtube.com/results?search_query=davis+phinney+webinars
I look forward to hearing from you as you have questions and concerns.