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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (930)Comment receiving replies
Thank you so much for your kind words. It makes me feel better to know I am not alone. Living with HCM is very hard. I have shortness of breath, feel very tired, and cannot do my daily work.
I see my heart doctor every three months. He told me I need open-heart surgery (myectomy or alcohol ablation). If not, I need Mavacamten. But in my country, no doctor does this surgery, and the medicine is not available. I only take beta blockers, 100 mg twice a day.
My health is getting worse. Breathing is difficult, and I cannot do my normal activities. I want to know how I can get treatment at Mayo Clinic. How can I get admission? Please, if you have any information, tell me. I need help to get better!
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@ache6941 if traveling to Mayo Clinic in the US is an option for you, you can submit a request here: http://mayocl.in/1mtmR63
For care closer to Ethiopia, you might have options with the Mayo Clinic Care Network. The Mayo Clinic Care Network is a select group of independent health systems that are granted special access to Mayo Clinic's extensive knowledge and world-leading medical expertise. The Mayo Clinic Care Network helps keep care local by providing guidance and answers to many questions that might otherwise require a referral to a specialist.
See hospitals associated with the Mayo Clinic Care Network https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members
In particular:
Saudi German Hospital Cairo https://sgheg.com/sgh/#/sgh/en
Egypt
Saudi German Hospital Riyadh https://riyadh.saudigermanhealth.com/ar
Saudi Arabia
International Medical Center https://www.imc.med.sa/ar
Saudi Arabia