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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 2 days ago | Replies (3467)

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@rmfunnybreathing

This is such a frustrating issue, seems like thousands and thousands of people have it yet we don't even know what it is.

I have had it for 6yr, began after taking pristiq. Buteyoko method sort of helped. I was diagnosed with sleep apnea after a sleep study. Also diagnosed with gerd after reporting painful acid reflux at night that coincided with a my worst ever period of bad breathing. I finally committed to using cpap every night once I learned it would both help sleep apnea and gerd.I have been taking ppi and sleeping inclined for a few months now, but the improvement seems to be wearing off. Endoscopy a week ago turned up nothing.

I have also found that smoking weed or vaping seems to have profound effects. It often gives immediate releif for one or a few breaths, then leads to periods lasting hours or days of either better or worse symptoms. I have a feeling that it may be just related to the feelings in the lungs simulating nerves involved in feeling a full breath. But I am also afraid it has made things worse over the long term and currently most days I inhale nothing but air. I would like to know if it is safe to have some vape/weed on special occasions when I especially want to be okay or during the most severe episodes.

I know it is somewhat linked to stress and has caused an unbearable feedback loop at my job that led me to drain my savings to take an entire year off work. I would like to be hospitalized and studied by experts until my life can be fully recovered. The effort involved in breathing excersise is quite extreme for the overall meh results it gives me. I feel like I've had other good periods lasting weeks where I put barely any effort into breathing methods, and maybe I was just smoking the right kind of weed or somethng, but it never really lasted.

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Replies to "This is such a frustrating issue, seems like thousands and thousands of people have it yet..."

I hear you—this whole thing is incredibly frustrating, especially when so many people seem to struggle with it, yet no one can give us a clear answer. It sounds like you’ve been through a lot trying to figure this out, and I really respect how much effort you’ve put into managing it.

It’s interesting that your symptoms started after taking Pristiq. Have any doctors acknowledged a possible connection, or has it been more of a personal observation?

It also sounds like you’ve tackled this from multiple angles—sleep apnea, GERD, breathing exercises, and even experimenting with vaping/weed. I can understand the temptation to use something that gives even a moment of relief, but I totally get your concern about long-term effects. Have you noticed if certain strains or methods of use (like edibles vs. vaping) make a difference in whether it helps or worsens things?

Taking a year off work must have been a huge decision. Has it helped at all in terms of stress reduction and your symptoms, or has it been more of a mixed bag? I really wish there was a way for you (and all of us dealing with this) to get the kind of deep medical investigation that could finally connect the dots.

You’re not alone in this, and I’m really glad you shared your story. Hoping we can all piece this puzzle together one step at a time.