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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (930)Comment receiving replies
I feel like I am alone in this journey. Thank you for creating this group. In my country (Ethiopia, Africa), I have never met other HCM patients, and I have never received advice from real patients who understand what I am going through. It is very hard because the treatment here is also poor.
Replies to "I feel like I am alone in this journey. Thank you for creating this group. In..."
People travel to Mayo from all over the world. Does anyone know how to contact the people who take a referral for surgery - from reviewing a case to financial help - before the concierge service can do their part? (Somehow this post originally appeared as a response to another topic. Must've not been paying attention.)
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I am so glad you found this support group @ache6941, you are certainly not alone!
The HCM/HOCM group is pretty active and shares a lot of information with each other. This helps in multiple ways, one being you may learn something you did not know, and another is you will find you share so much in common with others and you are not alone in your symptoms or your journey.
It is difficult to explain to someone who does not have this condition what it is like to live with this condition. The shortness of breath. Rapid, racing, pounding heart rate. Fatigue. Inability to do routine tasks or activities. Chest pain/burning. I could go on...there are many more symptoms.
Mayo Clinic Connect is unique for it's moderated content, it's members are patients or caregivers, and the warm and welcoming community where you are free to share with others.
Is your cardiologist in Ethiopia up-to-date on Hypertrophic Cardiomyopathy? Are you able to travel to the Mayo Clinic for a second opinion? People from all over the world come to the Mayo Clinic for the best care on the planet for many complex cases such as HCM/HOCM.