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Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: Feb 13 1:02am | Replies (170)

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@1pearl

Hi nohrt4me,
Just today, I received my bone marrow results in just nine days and message from my O/H that now she thinks I may have PMF and not ET and maybe I should see a bone marrow transplant specialist after she gets my “risk assessment” results whatever those are. Such a big change in just one month and so little conflicting data on me! I know I need a second opinion for sure, but do not know how to get a reputable one since I chose a Kaiser Senior Advantage Plan when I just turned 65 and seemed fine which I still do! I just have strange conflicting data when docs check me.
Thanks for listening.

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Replies to "Hi nohrt4me, Just today, I received my bone marrow results in just nine days and message..."

You have been through the wringer, 1pearl.

I really hope you are getting closer to a diagnosis and a doctor who knows what she/he is doing.

We're here for you.

Getting to the bottom of these things is a process, and everything about MPNs seems to unfold in slow motion, unlike with acute cancers. MF or PMF might explain that 400 point drop in platelets? Hoping your hematologist can set you up with an MPN specialist.