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What are most common side effects when starting HU (Hydroxyurea)?
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (151)Comment receiving replies
Thank for your response, it was very helpful. I did not take the 1000 told the NP that I would wait until I saw the Dr since I had only seen her once because she went out on maternity leave. So, I am continuing to take the 500 mg and will go back the end of this month for a retake . If my platelets are still high and after seeing the Dr. in March I will find another Dr. I think receiving a second opinion is necessary. I don't feel that giving me the medicine take blood work and then seeing me ever three months satisfies knowing my future. Will keep you posted.
Replies to "Thank for your response, it was very helpful. I did not take the 1000 told the..."
I know it’s a shocking diagnosis but keeping up with your labs will dictate how much meds you need. There’s no reason to actually go into office that often unless you are having physical issues that need to be seen in person. I have PV, diagnosed tow years ago and see my doctor every six months. Labs every month and we communicate through My Chart or telephone. Also this keeps my cost down being my ins sucks. Hang in there. Things will level out. It took about 7 months to get my dosage correct.
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I'll bet that every one of us on this forum has felt frustration with our medical "care."
We get a weird diagnosis, for a kind of cancer we didn't even know was possible. We're left stressed and bewildered.
Taking HU and having regular blood counts is the right course of action. But I do hope that you can also find a doctor who will answer your questions.
In the meantime, please remember that on this forum, you have friends who know what you're going through.