PMR Flare with New Issues

Posted by marilyncarkner @marilyncarkner, Feb 12, 2024

I have had PMR for 5 years and GCA for 3
Years.GCA seems under control or gone now PMR flared when I hit 3 /4 mgs alternating.
Additional symptoms with Flare are burning in upper arms and itching like my nerve endings are on fire. My rheumatoid doesn’t see the connection to PMR.
Very very irritating
Anyone else experience this ?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

I am down to 2.5mg prednisone from 15mg a year ago. Also taking 400mg plaquenil daily.
Two weeks after lowering to 2.5 my right hand started killing me. Middle finger swells and thumb joint hurt. It’s as if I suddenly developed rheumatoid arthritis which I never had. Going for blood test next week to see what’s going on. Starting to get leg and arm symptoms of PMR again which I haven’t had in a long time. But I refuse to increase prednisone. I already had osteoporosis before this medicine so it’s just exacerbating the situation.

I wonder if I will ever be able to get off the meds? I feel like this is a lifetime curse and the meds create other problems. Wish I didn’t have to start. Will my body ever start making its own cortisol again?

Also, with all the pain I was told you can’t take Advil while on these meds. I read above that someone was taking it to help with pain. Anyone else told not to take it?

REPLY
@szf10

I am down to 2.5mg prednisone from 15mg a year ago. Also taking 400mg plaquenil daily.
Two weeks after lowering to 2.5 my right hand started killing me. Middle finger swells and thumb joint hurt. It’s as if I suddenly developed rheumatoid arthritis which I never had. Going for blood test next week to see what’s going on. Starting to get leg and arm symptoms of PMR again which I haven’t had in a long time. But I refuse to increase prednisone. I already had osteoporosis before this medicine so it’s just exacerbating the situation.

I wonder if I will ever be able to get off the meds? I feel like this is a lifetime curse and the meds create other problems. Wish I didn’t have to start. Will my body ever start making its own cortisol again?

Also, with all the pain I was told you can’t take Advil while on these meds. I read above that someone was taking it to help with pain. Anyone else told not to take it?

Jump to this post

Lots of websites offering medical advice say you should only take Advil and prednisone together if that's your doctor's advice. The combination can cause bleeding in your gastric system.

Have you tried Tylenol? That's safe to take with prednisone.

REPLY
@jeff97

Lots of websites offering medical advice say you should only take Advil and prednisone together if that's your doctor's advice. The combination can cause bleeding in your gastric system.

Have you tried Tylenol? That's safe to take with prednisone.

Jump to this post

Yes, I actually have taken Tylenol when it gets really bad. But I just hate having to take so many pills anyway. Thank you for responding.

REPLY
@szf10

I am down to 2.5mg prednisone from 15mg a year ago. Also taking 400mg plaquenil daily.
Two weeks after lowering to 2.5 my right hand started killing me. Middle finger swells and thumb joint hurt. It’s as if I suddenly developed rheumatoid arthritis which I never had. Going for blood test next week to see what’s going on. Starting to get leg and arm symptoms of PMR again which I haven’t had in a long time. But I refuse to increase prednisone. I already had osteoporosis before this medicine so it’s just exacerbating the situation.

I wonder if I will ever be able to get off the meds? I feel like this is a lifetime curse and the meds create other problems. Wish I didn’t have to start. Will my body ever start making its own cortisol again?

Also, with all the pain I was told you can’t take Advil while on these meds. I read above that someone was taking it to help with pain. Anyone else told not to take it?

Jump to this post

When I got to 1, my doc said ok with ibuprofen, but to take a Prilosec with it as well.
If your doc says ok, note that there is a low-dose combo available that has 250 (standard 500) Tylenol and 125 (standard 200) ibuprofen. That has worked well for me. Start small, increase if necessary.
There are limits on Prilosec, both amount and timing. Make sure your doc is involved. Good luck.

REPLY
@szf10

I am down to 2.5mg prednisone from 15mg a year ago. Also taking 400mg plaquenil daily.
Two weeks after lowering to 2.5 my right hand started killing me. Middle finger swells and thumb joint hurt. It’s as if I suddenly developed rheumatoid arthritis which I never had. Going for blood test next week to see what’s going on. Starting to get leg and arm symptoms of PMR again which I haven’t had in a long time. But I refuse to increase prednisone. I already had osteoporosis before this medicine so it’s just exacerbating the situation.

I wonder if I will ever be able to get off the meds? I feel like this is a lifetime curse and the meds create other problems. Wish I didn’t have to start. Will my body ever start making its own cortisol again?

Also, with all the pain I was told you can’t take Advil while on these meds. I read above that someone was taking it to help with pain. Anyone else told not to take it?

Jump to this post

I used Tylenol for Arthritis and also Arnica cream successfully to deal with symptoms. I have sore spots on both hands and I have tapered down to 5mg. Staying active with exercise and dance and walking and trying to maintain good range of motion helps me. If my arms or neck or thighs started hurting again I would increase my prednisone, but I try to be sure its PMR and not just muscles that have not been used enough.

REPLY
@art43

When I got to 1, my doc said ok with ibuprofen, but to take a Prilosec with it as well.
If your doc says ok, note that there is a low-dose combo available that has 250 (standard 500) Tylenol and 125 (standard 200) ibuprofen. That has worked well for me. Start small, increase if necessary.
There are limits on Prilosec, both amount and timing. Make sure your doc is involved. Good luck.

Jump to this post

Thank you, I’ll ask my doctor about that. Of course I’m just praying I can get down to 1mg soon.

REPLY
@szf10

Thank you, I’ll ask my doctor about that. Of course I’m just praying I can get down to 1mg soon.

Jump to this post

Do not need to be at 1. That just happened to be where I was when I asked.

REPLY
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