Hello,
I too was diagnosed end of March of ‘22 following suspected Covid infection from march ‘21, with CSS (along with its bag of symptoms Fibromyalgia, brain fog, POTS, dysautonomia, post-exertion malaise (chronic fatigue, anxiety, sleeplessness, mcas, etc etc etc.

Due to my food (histamine loaded) and chemical sensitivity, I can’t tolerate any of the meds that help sometimes for folks.

After a year of trying to work and dealing with symptoms, I finally crashed, and had to quit working (along with many recreational activities) at age 58.

My ankles, Achilles and calf’s get really sore along with whole body of course, but I bought “plantar fasciitis boots” on Amazon that are like ski boot shells. They hold your ankles at a nice 90 degree angle…feels so good as I have hypermobility connective tissue issues and these take the strain off. Also have pneumatic leg massagers so I put my legs up on my wedge pillow (a must!) and let those cycle when my legs just don’t want to behave.

Massage, including Cranial release therapy, for me 2-3 week intervals as I can afford is great. I’ve tried float therapy and found that soothing.

I wear tinted glasses and noise reduction for ears if I’m in groups or public spaces. Usually avoid people now. I have a quick fuse to frustration now, never before.

Lucky to have some benefits and solid family support and spouse…I really feel extra sad for people trying to manage alone.