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Anyone else experiencing these symptoms with CLL diagnosis....?
Blood Cancers & Disorders | Last Active: Jun 10 12:23pm | Replies (24)Comment receiving replies
Have you had a FISH test and a chromosone test? There was a third blood test that I had but my mind is blank on it now. Those are what was used to determine the type and grade of mine. It is a deletion on chromosone 13 with a good prognosis.
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Not that I have been told the more I talk to people the worse I feel about my care. I have seen my Oncologist once since my diagnosis in June 2024 and if I wasn't pestering my GP about wanting to understand why I have the symptoms I have I probably wouldn't be getting any further look into things at all. I went almost 3 years with little to no answers then they found CLL but said people can go decades without symptoms - so still no answers really.