Vocal Cord dysfunction?

Posted by mermaid7272 @mermaid7272, Jun 11, 2020

Has anyone had a very frightening episode, very similar to drowning, where your vocal cords spasm, and close? No air can get in your lungs and it literally feels like you will die without air.
This has happened 3 times, a long (several years or months) time between attacks. It lasts about 2-3 minutes but of course feels much longer.
I do have appointment with a ENT dr. in several weeks, but am frightened it will happen again before I see him.
Any exercise or preventative hints?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @adkindt - sorry to hear about the misdiagnosis and generally long road to your diagnosis. I'm so glad you got a diagnosis that seems correct.

I experienced a pretty long road to my final diagnosis with asthma as an adult. The journey included a pit stop where one doctor thought I had GERD and treated me for that till we realized GERD meds really were not making a difference for me. I had chronic cough, too, which turns out to be my main asthma symptom.

I'm tagging a few other members on Connect who have talked about misdiagnosis with asthma or some other relevant diagnosis, and thus may have something to share about their experiences, such as @toby77 @ssgaurav2000 @payette78 @blm1007blm1007 @californiazebra @mth13.

adkindt - what made your doctor in Jacksonville, FL, decide against asthma and ultimately decide you had inducible larngeal obstruction?

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The lack of efficacy with a slew of medicines for 4 years, and after ruling out reflux with testing, the laryngoscopy with strobe told the story.

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Profile picture for blm1007blm1007 @blm1007blm1007

Sue-
Did the Vocal Cord Dysfunction VCD start before you learned you had Bronchiectasis?
I am wondering if one can somewhat expect to develop VCD after years of Asthma and clearing the mucus and or years of Bronchiectasis and clearing the throat.
I am constantly wondering if I am going to end up with a vocal cord problem with my constant having to clear the sputum from my throat that comes up on its own.

Do you know if the medical professionals know if both illnesses can cause VCD after a period of time of having to clear the mucus and how it might affect our vocal cords?
Barbara

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Great question! One I plan to ask my cough clinic lead physician.

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Profile picture for blm1007blm1007 @blm1007blm1007

Misdiagnosed: I was first told by my PCP doctor I had post nasal drip and the the second doctor, geriatric doctor, I went to twice said seasonal allergies and then the first PCP read the second doctor's summary and changed to saying seasonal allergies.

Misdiagnosed, with GERD, I did not believe I had GERD and did not start the PPI's that my local gastroenterologist said I needed, August of 2022, to take, Yet the Nurse Practitioner, in answer to my question after being told to start the PPI's by the doctors, indicated she had not ever seen such a good report and on a scale of 1-10 with ten being good... I was 9.
Per NJH, OCT. 2022, testing they indicated I did not have GERD.
Barbara

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I hear you. I was also misdiagnosed work silent reflux, which Ph and manometry testing ruled out.

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Profile picture for Sue, Volunteer Mentor @sueinmn

I believe I have had it for many years. To be honest, whenever I am handed a new diagnosis, I spend /zero time "wondering where I got it" - all I want to figure out is the best way to get rid of it, make it better, or learn to live with it.

I have been prone to laryngitis my whole life, and never could sing worth a darn, even though I came from a family of talented vocalists. I grew up in an industrial neighborhood where the snow in the yard turned gray from pollution within a few days, we played on the debris piles of the factories, and as a youth I worked in some very questionable factory environments. Then we remodeled old houses as a side gig for years, and I always gardened.

I have no idea what the professionals think about cause and effect - I am just happy the speech therapist has found some exercises that work for me.

All that said, my Dad was a talented tenor, and he always taught us kid to be careful how we coughed, cleared our throats and used our voices so we wouldn't "damage our pipes." When I first started airway clearance, it was immediately obvious that I needed to learn the proper huff coughing technique or my vocal chords would be angry - especially since I was nebulizing levalbutero and tobramycin twice a day as well. (Before the days where 7% saline was commonly used)

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Wow, I remember from your previous posts the industrial environment but not the fact that the snow became gray! Now that you say that I remember the snow in the streets becoming gray, understandable, but not the snow on the grass/yard etc.

For me it wasn't factory environment, it was school building environment. The old buildings and then the remodeling of the building and the after affects of the outgassing of all the new materials. And, like you, my involvement with my rental properties (50+ years) and my own home with remodeling etc. etc. And let me not forget the gardening from childhood into my adult years of using things such as peat moss.

Yes you are right about your statements related to " cause and effect/ spend zero time wondering where I got it". As I have said to myself it has to do with just living life and how ones' life unfolded through the years. However most of my life I have always looked for answers in everything, which as we know we can't always get and it can drive us crazy. Don't know if I can change that habit at my age, 🙄 I need to try, I need to, for many reasons.

I hope I am not incorrectly clearing my throat. I do the huff coughing with the air way clearance methods. I will again review what I do with the new pulmonologist I now must decide upon due to Dr. McShane's moving onto the NIH. Back to the big city for her vs. Tyler.
Thanks for sharing and your response, I understand.
Barbara

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Profile picture for adkindt @adkindt

I hear you. I was also misdiagnosed work silent reflux, which Ph and manometry testing ruled out.

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Hi @adkindt - I wanted to let you know I moved your post here to a discussion in the Ear, Nose and Throat support group on Mayo Clinic Connect. I did this because you indicated that after misdiagnosis, your actual diagnosis was a form of vocal cord dysfunction. Please meet members such as @mermaid7272 @imallears @jennymccormick @loribmt. They may be familiar with the kind of journey you've had with trying to get the correct diagnosis.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @adkindt - I wanted to let you know I moved your post here to a discussion in the Ear, Nose and Throat support group on Mayo Clinic Connect. I did this because you indicated that after misdiagnosis, your actual diagnosis was a form of vocal cord dysfunction. Please meet members such as @mermaid7272 @imallears @jennymccormick @loribmt. They may be familiar with the kind of journey you've had with trying to get the correct diagnosis.

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@lisalucier. My heart goes out to you. I've had that happen mm last year in August almost every time I mm woke up. If it happens again, try to relax, which I know is hard to do. At the worst, you could pass out, then the vocal chord will relax and you'll be able to breathe again and wake up. I had to have a trache because I have had bilateral vocal chord paralysis for 19 years and was able to live with it with adjustments on how I did things. (My vocal chords were permanently stuck close together.) After the surgery, the ENT Specialist at U of M discovered my vocal fold was swollen due to arthritis, closing the small airway I had. It would then spasm and close being so close to the other vocal fold. I believe you too are having a spasm of some kind. You will be mm ok until your visit to the ENT. I waited from August to November with spasms every few days. You'll be ok. I'll pray for you.

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