shakiness in limbs

Hi Elena @elenagormley, Welcome to Connect. There have been a few members who mentioned shaky hands with PMR but not sure it was after exercising. Here's a search link that shows the comments - https://connect.mayoclinic.org/search/?search=PMR+shaky+hands.

There are also several discussions on low dose naltrexone and PMR that you might want to scan through to learn what others have shared - https://connect.mayoclinic.org/search/?search=LDN+for+PMR.

Has your mom mentioned her shaky hands and legs after light exercise symptoms to her doctor or rheumatologist?

Hello, I am currently on 3 mg LDN taken at 9pm and 2mg Prednisone in AM. I am having some luck with my current fast taper of Prednisone (5 to 0 at 1 week each) after two years of PMR/Pred. I was off Prednisone recently for 10 days but PMR symptoms were not acceptable. I will stay at 3mg LDN for awhile because 4mg interfered with my sleep. 3 mg helped with sleep. Another issue is tendinosis likely from long term Prednisone use. I try and distinguish and identify the source of pain.

I was diagnosed with PMR and possible GCA in July 2024. I started on 60 mg. pred. in July and tapered down to 8 mg. the beginning of December. I had to go back to 13 mg. the beginning of January 2025, since I had a flare up. Since then, I have an occasional tremor in my right hand. Prior to PMR, I would have a tremor that maybe lasted a second or two. It usually occurs when I pick something up-i.e. coffee cup, utensil, etc. In January, hand tremors lasted longer. I did a crafting class in early Feb. and had to place small glass tiles in a pattern. Sometimes, I would use tweezers. During the entire class, my right hand was shaking uncontrollably. I had a tough time with the project. My mother was diagnosed with a familial tremor. It seems like her shaking occurred when picking up and using utensils. My father and paternal grandfather both had Parkinson's Disease.

I haven't discussed with my rheumatologist, yet. I have a neurologist appointment this week and I will bring it up.

Thank you very much for helping me find these threads. I'm interested in helping my mom. I send out hugs to everyone suffering with this disease and others. I know it's so challenging.