I am so sorry. I too have CSS/fibromyalgis. I spent all last summer on my bed with big pillows under my knees so that my feet could just dangle, because I couldn’t stand to have anything touch them, much less walk. I am now taking gabapentin (200mg 3X per day) and while I always have some level of pain in my hands and feet, it is much more manageable.

Hello,
I too was diagnosed end of March of ‘22 following suspected Covid infection from march ‘21, with CSS (along with its bag of symptoms Fibromyalgia, brain fog, POTS, dysautonomia, post-exertion malaise (chronic fatigue, anxiety, sleeplessness, mcas, etc etc etc.

Due to my food (histamine loaded) and chemical sensitivity, I can’t tolerate any of the meds that help sometimes for folks.

After a year of trying to work and dealing with symptoms, I finally crashed, and had to quit working (along with many recreational activities) at age 58.

My ankles, Achilles and calf’s get really sore along with whole body of course, but I bought “plantar fasciitis boots” on Amazon that are like ski boot shells. They hold your ankles at a nice 90 degree angle…feels so good as I have hypermobility connective tissue issues and these take the strain off. Also have pneumatic leg massagers so I put my legs up on my wedge pillow (a must!) and let those cycle when my legs just don’t want to behave.

Massage, including Cranial release therapy, for me 2-3 week intervals as I can afford is great. I’ve tried float therapy and found that soothing.

I wear tinted glasses and noise reduction for ears if I’m in groups or public spaces. Usually avoid people now. I have a quick fuse to frustration now, never before.

Lucky to have some benefits and solid family support and spouse…I really feel extra sad for people trying to manage alone.

I am so sorry to hear this! Sadly, I’m not qualified to confirm if it will or not, however, the sooner you start working on desensitizing, the better you may be long term. Rolling a tennis ball or anything that you can easily control for a minute or so each time, repeating it several times daily, may help break that extreme sensitivity. I strongly recommend you keep moving as much as possible. The human body is designed for movement and to stay still can cause much more serious problems like blood clots, bed sores, and isolation. Medical science isn’t perfect, so take an aggressive approach to your health management and fight one minute at a time. Just keep moving and donor surrender to the pain.