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Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: Feb 13 1:02am | Replies (170)

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@lynnebgraham

Hi @1pearl, yes Covid was definitely an eye opener. Why would we trust the medical system again, after pushing us into injections, we now know where not properly tested. I have had diabetes since I was 50, 24 years ago, so have had blood tests every 3 months. Have had MPN ET for over 16 years. Previously on Agralyn for that time. One aspirin a day since diagnosed with diabetes. Genetic in my case. I am on tablets, both brothers on insulin. I never questioned my 1st haematologist as everything was under control. A number of things happened at the same time, haematologist disappeared, couldn't get Agralyn from hospital, ran out of tablets, all just days before Christmas. Saw another Dr at clinic, he couldn't understand why I had never had a Marrow test done in 16 years. We trust our medical professionals to know what they are doing. So good to have this forum. On Hydrae 1 x500mg with 1 asprin per day. More blood tests in 2 weeks. Taking a while for platelets to go down this time. After not being on tablets for 2 weeks my platelets went through the roof. Hydrae seems to be settling them down. Happy for you that you seem to be controlling your levels, without medication. Please be cautious though, as an aspirin helps with stopping blood clots, which can cause strokes.
Thanks for listening, take care Lynne 🙂

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Replies to "Hi @1pearl, yes Covid was definitely an eye opener. Why would we trust the medical system..."

Hi lynne graham,

I would be fine taking an aspirin daily, but oddly enough after my former and never met in person after four cancellations primary doctor recommended that I take daily aspirin via a phone message from her office recommended I do, the H/O I did meet with for an appointment once sent me a message later not to take the aspirin. That is the only reason I have not taken the baby aspirin daily and I do have that here in case that changes. It really seems so incompetent that docs cannot communicate with one another in a supposed “care team” they advertise for mine. Only because I feel fine and have no symptoms and normal BP when I check daily on approved new monitor is why I really not do anything differently at this time and take no meds, just the same vitamins I have taken for years. Thankfully my platelets have gone done significantly by about one third by my doing no treatment and nothing differently. I am slowly recovering from a cough I have had for a while which started on a family vacation to Europe this past summer. I do make sure to get one hour of brisk exercise daily which is super simple for me to do as my adult daughter lives with us and has an exercise class in additional to her other academic college class again. That requires to her keep a daily log and we bike ride five or six days per week, do yoga and stretching, light hand held weighs at least two days per week. and a daily one mile walk daily. Maybe that is why I sleep so well and have no symptoms which I am very blessed to say I know. 😊
Thanks for listening and I am grateful for your insightful posts.