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@janetgeller9

Hello Teresa, the most difficult adjustment is the loss. Everyday, I feel I’m losing more of him. This was a smart, vital, Type A guy who has become withdrawn and socially isolated. He goes to PT 2X a week, takes his meds and eats well. I think he may have had Parkinson’s for awhile that has gone undiagnosed because he has had/has trouble walking, looses balance, has falling issues, can’t open a jar that I can open,etc. I lost my big strong guy. More upsetting to me is his cognitive changes, poor judgement, non-verbal. I feel very alone. Friends, family don’t live near us anymore. It’s just he and I-no kids. And now it’s not even him. I could go on forever, perhaps. I need community and connection that is absent right now. Also, based on his poor judgement, practically every day he creates some problem that shocks me and then I have to fix it. That partially answers your question but there’s so much more.

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Replies to "Hello Teresa, the most difficult adjustment is the loss. Everyday, I feel I’m losing more of..."

Thanks for your reply, @janetgeller9. It sounds like you and your husband need some assistance dealing with the significant changes you are both experiencing. In your first post, you mentioned that you were a therapist, practicing part-time. As such, you probably understand how helpful it can be to talk with someone about the changes you are experiencing. Do you know of someone who might be able to help you?

Regarding your husband, I would recommend that he see a movement disorder specialist to discuss the cognitive and physical changes he is experiencing. Perhaps a neuropsychologist might be of help as well. Has your husband been evaluated by a neuropsychologist?

At the very least, a physical therapy program for your husband might be great for the physical problems. Some special physical therapists have special in Parkinson's. I would encourage you to contact his doctor and ask for a referral for PT.