Acute myeloid leukemia (AML): What can I expect?

Posted by dell @dell060969, Aug 16, 2017

Newly diagnosed with AML, what to expect?

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@bettersleep68

Hello ....went to doctor
..we are going to do the v and v treatment...repeat bone marrow in 2 months..she said at me age 74 ...aggressive treatment would be hard for me..do you know anyone who did the v and v and had good results..I am worried I will not go into remission....thank you for your time

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Hi @bettersleep68 As we age, some of the meds used to treat AML can be pretty hard on the body. Fortunately there have been great advancements in the field of blood cancers over the past years that are much better tolerated by patients where traditional treatments aren’t an option. They are also used for patient with AML who aren’t candidates for a bone marrow transplant.

There are some awesome success stories with members in the forum. I want you to pop on over to this conversation with @lindagi and @dancouclanel4 along with other members on the same V & V regimen! I think you’ll feel a sense of relief!

AML successful treatment
https://connect.mayoclinic.org/discussion/aml-successful-treatment/
I hope this is helpful. Feel free post your questions over there! When do you start treatment?

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Has anyone taken vidaza and venclecta for aml and what results did you have
.and what were the side effects
..thank you..justing looking for some information

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@loribmt

Hi @bettersleep68 As we age, some of the meds used to treat AML can be pretty hard on the body. Fortunately there have been great advancements in the field of blood cancers over the past years that are much better tolerated by patients where traditional treatments aren’t an option. They are also used for patient with AML who aren’t candidates for a bone marrow transplant.

There are some awesome success stories with members in the forum. I want you to pop on over to this conversation with @lindagi and @dancouclanel4 along with other members on the same V & V regimen! I think you’ll feel a sense of relief!

AML successful treatment
https://connect.mayoclinic.org/discussion/aml-successful-treatment/
I hope this is helpful. Feel free post your questions over there! When do you start treatment?

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Thank you for all the information ..you have been very helpful ...

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@bettersleep68

Has anyone taken vidaza and venclecta for aml and what results did you have
.and what were the side effects
..thank you..justing looking for some information

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Hello, I was diagnosed with AML in December 2021 & started on v&v in January 2022. I was 71. My oncologist said that Venclexta was a “game changer”. She was right, I was in remission in 2 months. I pray that u have the same result. My brother also has AML so I changed to his oncologist who convinced me to have a Bone Marrow transplant which I had in July 2023. This July will be 2 years in remission. I wish u all the best in your journey. I’ll give u some wise words of wisdom from my brother. He is 4 years now. From the time he was diagnosed he NEVER gave up. He never gave in to negative thoughts & always knew he would beat it which he did and prayer helped too.

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@jan8

Hello, I was diagnosed with AML in December 2021 & started on v&v in January 2022. I was 71. My oncologist said that Venclexta was a “game changer”. She was right, I was in remission in 2 months. I pray that u have the same result. My brother also has AML so I changed to his oncologist who convinced me to have a Bone Marrow transplant which I had in July 2023. This July will be 2 years in remission. I wish u all the best in your journey. I’ll give u some wise words of wisdom from my brother. He is 4 years now. From the time he was diagnosed he NEVER gave up. He never gave in to negative thoughts & always knew he would beat it which he did and prayer helped too.

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Thank you so much for your response ..I pray I do as well .thank you again for sharing .

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Starting vidaza and vencllecta for aml scared and very anxious...praying it helps

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@bettersleep68

Starting vidaza and vencllecta for aml scared and very anxious...praying it helps

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Hi @bettersleep, it is always scary (and hopeful) to start a new treatment regimen. I moved your question to the discussion where you're talking about Vidaza (azacitidine) & Venclexta (venetoclax) with members.

When will you start treatment?

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@colleenyoung

Hi @bettersleep, it is always scary (and hopeful) to start a new treatment regimen. I moved your question to the discussion where you're talking about Vidaza (azacitidine) & Venclexta (venetoclax) with members.

When will you start treatment?

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Today

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In reply to @bettersleep68 "Today" + (show)
@bettersleep68

Hi @bettersleep68 This is your first step towards purging your body of those cancer cells! It is scary starting chemo treatments. But I don’t have to tell you, AML is much scarier! So I hope you do well today. Let me know how the appointment went, ok?

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Got 2 shots in abd....the pill is still going thru my insurance..had some vomiting when I got home..tummy is sore. One down and four more to go then 28 day break..thanks for caring

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