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Myeloma newly diagnosed

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (10)

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@gingerw

@treehouse5437 I imagine you went through MGUS then SMM before the multiple myeloma diagnosis? Of course you have a lot to process, including: what do I do now, what treatment is right for me, how long before I know if it is working, what do I need to do to change my diet, should I keep working, how much do I tell my family/friends, etc. Right? Ask away, here!

Like you have probably read here and other groups on Mayo Connect, every person is different, each case is unique. What we have in common is a diagnosis. For multiple myeloma, there are several different types, and it will help you to understand the different ones. As far as treatment, align yourself with a good hematologist/oncologist that you trust. If you have comorbidities, treatment may need to be tailored to fit around all that.

There are many myeloma patients with many stories. I don't know that you can find an average lifespan, given all the factors. But I do know people with 20+ years of myeloma diagnosis! Medical cost is a subject for you and your insurance. Being off work is necessary if your energy/side effects are too much to handle.

Mayo Clinic, in conjunction with the International Myeloma Foundation, offers a monthly Zoom support group, usually the third Saturday of each month. Contact Miceli.Teresa@mayo.edu to get on the list to be invited.
Ginger

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Replies to "@treehouse5437 I imagine you went through MGUS then SMM before the multiple myeloma diagnosis? Of course..."

No MGUS- Anemia for the past year and then MM diagnosis.