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@johns92118

i have hydrosephalus and didnt know it i couldnt walk, sort of shuffled. got an appointment with neurologist ay mayo and after a ouple months testing they said i had hydrosephalus and needed a shunt..they put one in and after a period og trial and error fount the ccorrect setting for shunt. now i think i am to go in every yesr to check it. so far so good. (fingers crossed). i hope you get good results.

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Replies to "i have hydrosephalus and didnt know it i couldnt walk, sort of shuffled. got an appointment..."

@johns92118 and all... Hello. I'm so sorry you are dealing with this stuff. It's really distressing isn't it? I have the shuffling in the morning, but my walking improves as the day goes on. Headaches, neck and shoulder and arm nerve issues with weakness and pain most of the time. The brain MRI at Mayo did not indicate Hydrocephalus, but does show vertebrobasilar disease, the left vertebral artery that feeds the left side of the brain into the base of the brain and all the stuff that's there, including perhaps the nerves leading into the right arm. So, this may be the cause of the nerve and right sided issues. Don't know for sure. No definitive hydrocephalus at this point.

I'm seeing a vascular neurologist soon, having a CT brain scan first, and hopefully getting answers and some treatment. I currently find cold cloths, ice packs give me good relief from headaches, nerve issues from the shoulder up the neck to the head... Also on the arm...We'll see what the doc and pictures say.

I am tired of all this mess, actually. I am just tired of it. It's a fight to get through the day some days as I have other things going on also. I accept where I am in this life of mine, just had my 78th birthday yesterday for which I am so grateful! But, I'm tired!

You are blessed to have your diagnosis and the shunt which seems to help. I don't think I qualify for any surgery at this stage, so I hope to have some treatment options.

Blessings as you walk this crazy journey! elizabeth