Hi lynne gragham,
Yes, I think docs just want us to take what they prescribe for what they think we have. I just cannot do that. I really need to know what I really have! Being an optometrist and able to think for myself, I question their decisions, especially if they have never seen me in person or are are going on one lab test. I still have not met by primary doctor and changed to a new one after four cancellations from the one I first selected! I have seen an oncologist/hematologist as I was directed there. I actually requested to have a bone marrow biopsy to see what I really have and did it four days ago. It takes a while for results, so I do not know the results, only that I have just CALR mutation per blood work. It is confusing to me to have a blood test one month later that shows my platelets dropped by 411 on their own by my doing nothing differently. I have not filled nor taken Hydrea prescribed for me twice per day, 500 mg from my initial blood test. I have not taken one baby aspirin once per day as O/H actually advised me against taking baby aspirin after primary doctor who never ever saw me had her medical assistant call to tell me to take it. I really question the medical system as a whole now, especially after COVID and so much reliance on AI and target numbers based upon templates. PPO prior that I had prior and now senior advantage plan I have now both seem somewhat incompetent.
Thank for listening to my concerns.