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Does Mayo endorse specific neuropathy supplements or cures?

Neuropathy | Last Active: Feb 10 8:37am | Replies (38)
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@allegheny

Hi John, I was diagnosed with neuropathy 8 yrs ago through a EMG. I must say for me it was the most painful agonizing procedure that I have ever had to go through. Since then I have a new Neurologist and he ordered an EMG to compare and try to find out what type of neuropathy I have. I made appt and had to cancel because of fear of the pain. I had a consult with him today and asked about a surface electromyography, he never heard of that. I asked him about a neromuscular ultrsound, his response was we dont do that around here. Luckily I did research on this procedure and their is an institute not too far from me that does that. He said go for it, if needed he would give me a referral. Are you familiar with these procedure, if so any info you can share. I saw both of these on Mayo Connect. The first dreaded EMG said idiopathic, why would it change. Frustrated in Florida..

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Replies to "Hi John, I was diagnosed with neuropathy 8 yrs ago through a EMG. I must say..."
John, Volunteer Mentor | @johnbishop | Feb 6 1:41pm

Hi @allegheny, I've had ultrasounds for other conditions but am not familiar with a neuromuscular ultrasound. I did a search of Connect and found that @jeanniem and @tasneemb have mentioned a neuromuscular ultrasound in other discussions and may have some thoughts or suggestions. I did find a few research papers on the topic.

-- 2023 - The role of neuromuscular ultrasound in diagnostics of peripheral neuropathies induced by cytostatic agents or immunotherapies: https://actaneurocomms.biomedcentral.com/articles/10.1186/s40478-023-01685-9
-- 2019 - Neuromuscular ultrasound in clinical practice: A review
https://www.sciencedirect.com/science/article/pii/S2467981X19300253

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mrmacabre | @mrmacabre | Feb 6 2:44pm

I've had an EMG done by 3 different neurologists in the past 10-12 years, and while it's not exactly pleasant, it wasn't that bad IMO. However, I've been getting tattooed for 25 years now, so my pain threshold is probably higher than most other people.
It took those 3 neurologists and 2 neurosurgeons to determine that the neuropathy in my feet was idiopathic poly neuropathy, no cause could be determined, even after every test they could think of to try.
It's beyond frustrating.

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