Advice on Penis pumps

Posted by graybeard46 @graybeard46, Jan 5 8:37am

I am 4 months post prostate surgery and soon to start radiation since some cancer still evident. The mental stress of cancer is bad enough but not having sex with my wife adds greatly to my getting down . I bought a pump from menmd a month ago but not able to get rigid enough for sex and the rubber tension ring is semi painful and makes any amount of of pleasure difficult. I’m tempted to try injections but with radiation and hormone treatments which kill my testosterone, maybe I should be more patient?

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@johnici

Born in 1944. I had radical prostatectomy Aug. 2018, Gleason 4+3, ex capsular, seminal glands removed and some lymph. Margins were clean but PSA rose in 2020 and I had beam radiation. PSA again rising (0.85 Dec 2024) and will likely do a PSMA scan, possibly leading to hormone therapy, as it is metastatic.
As to penis pump question, urologist mentioned in passing after 2018 surgery that it could help blood vessel recovery but nerve damage from surgery was probably permanent. Prescribed Viagra and Cialis for me to experiment with. Surgery had cost length and Cialis was only intermittent help, seldom getting penetration hardness. About 2020 I had decided improving blood in the pelvis was worth doing and I got a simple manual pump, (under $20 on EBAY) and began to use. Program was at least once a day, EVERY day from then until now.
Results built slowly and nerve damage meant the sensations were altered, less pleasurable and no possibility of ejaculations since no seminal glands. I have stayed with it because the physical effects have been remarkable.
After 4 years of almost daily use I have regained lost length and substantially gained girth. It is not painless since a very tight ring works best and heavy vacuum can be uncomfortable.
Tight ring and heavy vacuum produce for me a very rigid deeply purple state more than capable (as long as ring stays on) of sexual activity. It stays until the pressure ring is removed. Your partner would find it more than sufficient.
Permit me an old story of the English lord who, on waking up found unusually good morning wood. When his manservant/butler asked if The Lady should be alerted he replied, "no please just get me the baggy Tweed trousers, I think I will smuggle this one into town".
Hope this helps you work on the problem. If you treat it like an important project worth some personal pain/discomfort you can have better times I think.
PS: most come from China, are inexpensive but as of today (Feb 50) may be caught by new USPS ban on Chinese mailings to US.

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John, I’m happy for you with the results you described. Had my surgery in 8/24 and 2 yrs younger than you , got a pump months ago with little luck and now going thru hormone treatments and radiation I get too frustrated to try the pump every day. The ring hurts and the few times I was hard enough for sex , the pleasure that I dream having again wasn’t there. I was lucky having sex several times a week for 40 yrs with a younger wife who would have been happy with once a week wanted to please me. Can’t help but think she is not suffering as I am . When treatments are over I will try anything and everything to feel normal once again including injections. Good luck

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@graybeard46

I take 5 mg of cialis every other day then take 20 mg when hoping for a reaction then another day I try 100mg of viagra still no luck , this type of cancer is a double hit on the body and a battle not to get depressed even when my cancer is hopefully untraceable

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I agree

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In reply to @stevieg "I agree" + (show)
@stevieg

Coincidentally on this subject , I just got off a zoom appointment with my oncologist who is very cold and God like . Reason for meeting was to ask if I really needed my second hormone shot when radiation is completed ? I told him I was anxious to work on getting my sex life back knowing that the hormone shot lasts about 3 months. His response was like a knife in my heart. He said at my age after what I’ve been through, my sex life is over even with penis injections . He said if sex was so important you should not have had surgery and enjoy the maybe 5 yrs you would have left . I’m trying not to believe him but he is a poor example of a top Dr. at a top Boston Hospital

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@graybeard46

Coincidentally on this subject , I just got off a zoom appointment with my oncologist who is very cold and God like . Reason for meeting was to ask if I really needed my second hormone shot when radiation is completed ? I told him I was anxious to work on getting my sex life back knowing that the hormone shot lasts about 3 months. His response was like a knife in my heart. He said at my age after what I’ve been through, my sex life is over even with penis injections . He said if sex was so important you should not have had surgery and enjoy the maybe 5 yrs you would have left . I’m trying not to believe him but he is a poor example of a top Dr. at a top Boston Hospital

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Wow that’s so cold I just relocated and go to a new onocologist tomorrow I’m going to explain the terrible side effects I’ve been on Lupron almost a year now finished 46 radiation treatments last may but the have doubled the dosage of the lupron and extended treatments from 3 to 6 months and it feels like side effects doubled also

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@jeffmarc

This is a common problem, I found the same difficulty with the pump, as have others that have commented after trying to use it. It might help if you were to take Cialis or Viagra, sure can’t hurt to try, but the only real help, if that fails, is the injections.

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One of the reasons I said no to treatment .I was 9 Gleason with pse of 56 oh yeah group 5. It has spread. My entire life was women. T the point of being sick. LOL. One wife playmate other S jet pilot. Then in between more than you can count. Sy one point not bragging I was an athlete. Walking down the street in fl. Girls would pull over they on vacation would ask take your shirt off so we can take a picture with you. More pics of me in bars there getting ,3 way kisses or boobs from ,2 or 3 girls. So I said no when I heard im potence. Problem is I ended up that way now. So tired hard to get up. Bad bone pain
I'm good with it I guess
I do wake up scared some days. Just got moving fast enough I guess
I stay to myself. I know people are sick of me actually telling them how I feel when I get asked. Good luck.

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@tryjcr

One of the reasons I said no to treatment .I was 9 Gleason with pse of 56 oh yeah group 5. It has spread. My entire life was women. T the point of being sick. LOL. One wife playmate other S jet pilot. Then in between more than you can count. Sy one point not bragging I was an athlete. Walking down the street in fl. Girls would pull over they on vacation would ask take your shirt off so we can take a picture with you. More pics of me in bars there getting ,3 way kisses or boobs from ,2 or 3 girls. So I said no when I heard im potence. Problem is I ended up that way now. So tired hard to get up. Bad bone pain
I'm good with it I guess
I do wake up scared some days. Just got moving fast enough I guess
I stay to myself. I know people are sick of me actually telling them how I feel when I get asked. Good luck.

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Ditto, ya the how you feeling question can’t be answered without walking in our shoes

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@graybeard46

John, I’m happy for you with the results you described. Had my surgery in 8/24 and 2 yrs younger than you , got a pump months ago with little luck and now going thru hormone treatments and radiation I get too frustrated to try the pump every day. The ring hurts and the few times I was hard enough for sex , the pleasure that I dream having again wasn’t there. I was lucky having sex several times a week for 40 yrs with a younger wife who would have been happy with once a week wanted to please me. Can’t help but think she is not suffering as I am . When treatments are over I will try anything and everything to feel normal once again including injections. Good luck

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Glad to see you say when treatments are over you will keep trying. I did not realize you were doing hormone. One reason I went to a lot of effort was hormone was yet to come and would suppress ( loss of libido effect.). Kinda "make hay while the sun shines" approach.
Once treatment is over if you persevere with the pump you will get ok with the pain/discomfort and results will come. (no pun intended). Good luck.

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@graybeard46

Coincidentally on this subject , I just got off a zoom appointment with my oncologist who is very cold and God like . Reason for meeting was to ask if I really needed my second hormone shot when radiation is completed ? I told him I was anxious to work on getting my sex life back knowing that the hormone shot lasts about 3 months. His response was like a knife in my heart. He said at my age after what I’ve been through, my sex life is over even with penis injections . He said if sex was so important you should not have had surgery and enjoy the maybe 5 yrs you would have left . I’m trying not to believe him but he is a poor example of a top Dr. at a top Boston Hospital

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Graybeard - no wonder you are depressed dealing with this imbecile! Sorry, no amount of letters after your name makes you “smart” or a TopDoc when you talk to patients in this manner.
Not saying that he should agree with your version of treatment, but He should be offering words of encouragement and solutions to your problems - NOT telling you “Dude, you’re gonna be dead soon, hug your grandkids…”
I think you should dump this guy after your treatment is complete - OR leave him now and get a second opinion on continuing ADT.
Who knows, maybe some other doc will agree with him that you do only have 5 yrs left and you should spend them screwing your brains out….just sayin…

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@johnici

Glad to see you say when treatments are over you will keep trying. I did not realize you were doing hormone. One reason I went to a lot of effort was hormone was yet to come and would suppress ( loss of libido effect.). Kinda "make hay while the sun shines" approach.
Once treatment is over if you persevere with the pump you will get ok with the pain/discomfort and results will come. (no pun intended). Good luck.

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Wild horses couldn’t keep me from trying even if I have to find a young cadaver lol😂

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@stevieg

Wow that’s so cold I just relocated and go to a new onocologist tomorrow I’m going to explain the terrible side effects I’ve been on Lupron almost a year now finished 46 radiation treatments last may but the have doubled the dosage of the lupron and extended treatments from 3 to 6 months and it feels like side effects doubled also

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They do give you double the amount of Lupron in a six month shot versus a three month shot the Lupron dissolves it a very slow rate and is supposed to dissolve at the exact same rate whether it’s a three month or a six month shot. I wonder if something else could be the reason for your problems, But you never know how Lupron will affect every Different person, you may be an exception.

The effects of Lupron get worse over time. The brain fog the muscle deterioration take time to happen. Even the hot flashes may not appear at the beginning.

A one Month Lupron shot is 1/3 of the amount of a three month shot. Maybe you want to try that next time Just to see if that makes a difference for you.

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