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Thymic Tumors

Cancer | Last Active: Feb 18 4:29pm | Replies (63)

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@khiggs321

Hello,
I’ve had Thymic carcinoma since 2023. I had a thymectomy that removed the whole mass. Then proton radiation. Then is metastasized to my neck. Had spine surgery, debunking and fusion in c4 c5 . They didn’t get all of it. I went through chemotherapy cisplatin /Paxil taxol. Help a little. Then I tried keytruda immunotherapy. I didn’t respond much. I have a spot on my liver, brain, base of my skull that affects nerves in my face, and on my lower back. I’m starting 10 radiation treatments for the spot on the base of my neck n spine. They say I may have a year or less depending on how well radiation does and I will also be starting a new pill lametia and inhibitor. Pain is mostly controlled. I’m 52 years old and will look to holistic, and any new treatments or procedures. I have too much to live for. N when the pain is controlled I go out, I walk and stay positive. If anyone has any new ideas for me I would love to hear. Thanks 🙏

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Replies to "Hello, I’ve had Thymic carcinoma since 2023. I had a thymectomy that removed the whole mass...."

@khiggs321, you've been through a lot in less than 2 years. You mention holistic or supportive treatments. You may be interested in this related discussion:
- - Cancer and working with integrative medicine https://connect.mayoclinic.org/discussion/a-possible-solution/

More and more cancer centers and oncology specialists are open to discussing and integrating complementary medicine in programs called Integrative Medicine or Integrative Oncology. Integrative medicince is offered at many cancer centers of excellence, including Mayo Clinic.

Here's a link to more information about Mayo Clinic's Integrative Medicine programs
– Integrative Medicine and Health https://www.mayoclinic.org/departments-centers/integrative-medicine-health/sections/overview/ovc-20464567

In this Mayo Clinic Q & A Podcast. Dr. D'Andre talks about how integrative oncology can be incorporated into conventional cancer care at Mayo Clinic.


Have you talked to your oncologist about integrative oncology? Is your pain being managed by palliative care?