Richter's Syndrome: Is anyone else dealing with this disease?

Posted by donnarichterssyndrome @donnarichterssyndrome, Feb 24, 2022

I have recently been diagnosed with Richter's Syndrome- my CLL/SLL which I have had since 2008 has now undergone a "transformation" to Richter's; which is Large Diffuse B Cell Lymphoma, however because of the transformation, it is even harder to deal with. Right now I am going thru R-CHOP (first treatment last week) to hopefully put things in remission. I will need a transplant in order to go into remission. I am working with my Oncologist as well as Moffitt Cancer Research Hospital, who can hopefully help me. What I have is extremely rare. Only 2-8% of CLL (Chronic Lymphocytic Leukemia) patients develop this disease. There really aren't even studies out there; hardly. Is anyone else dealing with this disease?

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csematones | @csematones | Jan 24 12:30pm

His was diagnosed through biopsy which I believe is the only way to definitively know. They were pretty sure however that confirmed it.

Colleen Young, Connect Director | @colleenyoung | Feb 5 4:16pm

In reply to @mrsg263 "Hello. Are you able to tell me if the Richters was confirmed via biopsy only or..." + (show)

@mrsg263, I hope you saw the helpful post from @csematones.

Mrsg, have you been diagnosed with Richter's syndrome or is that a possibility being investigated? How are you doing?

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