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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 3 hours ago | Replies (886)
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@janiemae

My name is Janie. I am 71 years old, mother of 5, and 5 bonus children, grandma to 7 girls and 5 boys, great grandma to 2 boys and 1 girl. I live in northern Minnesota with my husband, who was just diagnosed with undifferentiated pleomorphic sarcoma (UPS) last week. We had our first visit to Mayo in Rochester, MN on January 27th, for consult, CT of chest, and biopsies. Friday we have three more appointments with radiation oncology for consult, stimulation therapy, and MR of right humerus. There are so many unknowns in our life right now and it’s hard to process. I saw the words American Cancer Society and burst into tears. It seems like everything is so uncertain right now. How do you convert from wife to 24/7 caregiver to someone with cancer?

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Replies to "My name is Janie. I am 71 years old, mother of 5, and 5 bonus children,..."
ctflyr | @ctflyr | Feb 6 9:56am

Hi Janie....to answer your question, it's one day at a time. Processing your situation is too hard all at once, though that's how it hit you and your husband. Draw strength from loved ones...hopefully close by.. ..and the fact that your husband will receive great care from experienced medical professionals at Mayo. It will be a rollercoaster of emotions and stress. Please get help from your loved ones, rest when you can, and realize you can only take it one step, one day at a time. Wishing you and your husband well in your journey...❤️

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Colleen Young, Connect Director | @colleenyoung | 3 days ago

@janiemae, such a good question "How do you convert from wife to 24/7 caregiver to someone with cancer?"

You might wish to repeat that question as a new topic in the Caregivers group here: https://connect.mayoclinic.org/group/caregivers/

While not the same cancer type, this older discussion gives some helpful tips:
- How can I be a supportive caregiver? HPV Squamous Cell Carcinoma https://connect.mayoclinic.org/discussion/diagnosis-and-discussions/

How are the appointments going? How are you holding up?

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