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@loribmt

Hi @kerstij. It’s been a couple of weeks since we’ve chatted so I thought I’d drop in this morning to see how you and your husband are fairing. Has there been any new developments with his gvhd? Hopefully he’s agreeing to take his meds more regularly and following suggestions from his BMT team. How are you holding up?

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Replies to "Hi @kerstij. It’s been a couple of weeks since we’ve chatted so I thought I’d drop..."

Hi Lori,
I’m sorry that I haven’t responded. We’ve had a lot going on & I just didn’t have the energy to continue my story. I think I left off with us having to find a house to bring my dad in to live with us. It’s very eye opening when life throws you such sudden curveballs.
Things were fine for the next several years, I even got to play volleyball with my dad on his team 😉
Then things became more complicated & difficult.
Our son got married & the day after that my dad collapsed. He was at his lady friend’s house. We had to call 911 & they transported him to the hospital. My dad need a full bypass, they were only able to pull off a triple bypass. During the surgery he suffered a stroke in the frontal lobe due to a clot that I guess broke free & landed there.
I took care of him, drove him to all his doctor appts involved him with all family activities etc.
Anyway, it was a crash course on how to be patient when he’d ask the same question over & over & over until the answer finally registered & went to the part of the brain that holds memories. It was very difficult, a lot of times I’d find a way to answer his question but word it differently to make it easier for me. I/we did this for over 3 yrs. It became obvious that he would be safer in an assisted living home that could keep him safe from just wandering off from home with us. We have wonderful neighbors & they all knew him but it was unsettling when neighbors call & ask if we knew that he was walking down one of our main roads talking on his cell phone 😣
Anyway, we did get him placed near us & we’d visit him, bring him here & I’d take him to his doctor appts etc. That lasted 5-6 yrs before he finally passed.

I promise to continue with what’s been going on more currently but right now I need to deal with some stuff & get going on dinner.

Thanks for reaching out, again I’m sorry I haven’t responded sooner.
Have a safe Memorial weekend!