@luvnsunshine I would come with a list of questions pertaining to your situation - treatment options, risks, major side-effects, likelihood of success, process, etc. Don't be afraid to ask for clarification of any statements or responses.
The best thing we did was record each session because we knew that there we wouldn't hear. We, of course, asked the doctor, nurse or PA if we could but not one ever objected.
It's a tough process, and gets mentally and physically very difficult. Treat every provider with respect as they are there to save your husband's life.
I have posted this a number of times, but folks seem to feel it is of value. So here it is again.
I had SCC on the base of my tongue and a couple of lymph nodes in the fall of 2020. I had chemo and proton radiation, since have had multiple cleans scans.
I wrote a blog during my experience (non-revenue generating) if you would like to review it, the link/URL is below. My wife, Suzy, wrote a wonderfully insightful post called lists and non-advice advice.
https://stevefleurysblog.com/2021/01/05/lists-and-non-advice-advice/
You can read the entire blog at:
https://stevefleurysblog.com/2020/10/29/part-1-the-beginning/
Wow, thank you so much for all this incredibly helpful advice, and for sharing your blog! Recording the sessions is such a wonderful idea – I honestly hadn't even thought of that, and while it feels a little daunting to ask, it makes so much sense considering how much information we'll be bombarded with. I'll definitely come prepared with a list of questions. Your blog looks like an amazing resource, and I'm really looking forward to checking it out, especially the post by your wife. Thanks again for your support and for sharing your experience so openly. It means so much, and I'm truly grateful for your kindness.