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@scottij

@s7r3welty
First congratulations on hitting five years with a reconditioned ticker. Well done. I just hit five years myself and my tac trough is stable between 7.4 and 7.8 (blood tests every three months now). While many people transition off of tac due to the side effects and potential kidney damage, my medical masters at Mayo believe I may be genetically inclined to tolerate tacrolimus. My dosage is 2.5 mg in the AM and 2 mg in the PM. That has been stable for the last three years. Kidney and liver numbers are outstanding.

I am not sure what side effects you are experiencing. I had the gamut from leeched cartilage in joints (two new artificial hips), hair thinning, and cramps that just did not quit. Magnesium supplements helped with the cramps. Surgery took care of the hips and while my gait is a bit gangly, I still play basketball and am averaging 34,000 steps per day. As for the hair, I go to Great Clips every three weeks now and get a close to the scalp buzz. I love how easy caring for my hair (such as it is) has become.

For me I embrace the side=effects. It is part of the new me and I wear them as a badge of honor.
Ping back if you can share more about your side effects.
Best always,
s!
Scott Jensen

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Replies to "@s7r3welty First congratulations on hitting five years with a reconditioned ticker. Well done. I just hit..."

I have never been able to do 34,000 steps a day. I am lucky to get 3-5,000 steps a day since being switched to tacrolimus. I was at 10,000 - 15,000 steps a day on cyclosporine. I don't know why they want my tacrolimus level that high. I have never been in rejection. When they started me out I was at 5.6 and felt good. They kept telling at 5yrs. the meds would be tailored back.