My question is i would like to see other heart transplant patients blood level on tacrolimus and how long from transplant. I am getting tired of headaches, sore muscles and joints. My experience with a heart transplant is medically i can not enjoy the wonderful gift I was granted.

I have had a pretty good experience. I had bumps in the road, but they were explainable and corrected by adjusting doses and removing a medication.

I did not like the high tacrolimus dosages the first year, They kept me at a 10 or 11 trough level. The tac symptoms did not kick in until I was about 6 months post HTX. I had neuropathy in my feet and joint pain in various places and was so tired, not to mention seriously concerned for my kidney. Now that I am 1 and 1/2 years out they are letting me go lower to a 7 trough. My kidney levels did improve a bit at a 7, and are as improved as they can be while being on tacrolimus period. I think I will go even lower in a few more years.

It is very hard, I feel acceptance for me and not worrying about tomorrow and living for today is the best thing I can do for myself. After all, I won the organ lottery and I am living today because of a the gift of time and life I was given. Believe me when I was having bad times, that was not in the forefront of my mind.
Sending best wishes to all!