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@jeremysvt01

I'm a 63 yo male. I starting having palpitations last April and took myself to urgent care where they diagnosed me being in VT. They rushed me a to a local hospital in Baltimore where they stabilized me. The next day I had a heart cath which revealed 90% blockages and the next day I underwent quadruple bypass. Sadly, the bypass did not fully resolve the VT and I had an ICD put in. My EP scheduled me for Ventricular Ablation and as part of that preparation took me off Amiodarone 8 weeks prior to the ablation appt. Amiodarone is the main drug that controls my VT and one should not stay on it long term. The EP claimed that I needed to be off it so that during the ablation he could see where the VT was occurring. When pressed, he called it a calculated risk. I lost the bet and 2 weeks into being off the drug, I experienced a VT storm and my ICD went off while I was driving. Fortunately, I was able to control the car. I wound up in the hospital for 2 days getting reloaded on the Amio. I changed EPs who scheduled me for an ablation without taking me off the Amio and sadly, he could not get my heart to go into VT while under anesthesia. So no ablation was done. Ironically, upon coming out of anesthesia, my PVCs started right back up again. My doctor is now telling me that although my heart structure is very good and performing well, I will just have to manage the VT with medicine. I've read that lifestyle changes are important too. No caffeine, very little if any alcohol, etc. I have always been active and exercised and I drive a lot for my work. So it's all very worrying and disappointing that even one of the best VT specialists in the country could not find where to ablate. The CT and MRIs did not show any scar tissue. So it's likely an irritated nerve ending, I am told. I'm trying to get used to the idea of living with this the rest of my life.

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Replies to "I'm a 63 yo male. I starting having palpitations last April and took myself to urgent..."

I am sorry to hear this. My story is similar ( over 3 years now). I have changed cardiologists and am about to see another electrophysiologist in New Orleans. I fear I will hear the same . My episodes are “ nonsustained” but beta blockers, calcium channel blockers do not control my v-tach. I have almost passed out while driving but never been shocked by my defibrillator until I underwent a surgery for melanoma ( no one mentioned this to me until a pacer rep did an interrogation). I have been on amiodarone( almost went into full CHF. Most recently tried propafenone with control but same side effect. ( my abdomen looked like I was 9 months pregnant and I couldn’t breathe. I have had possible POTS, ruled out anxiety, ruled out thyroid, ruled out potassium, magnesium and calcium problems. Was told to try lexapro( I refused). Now being told possibly brugada syndrome. Very erratic heart rhythm in the evening and especially after meals. Hopefully I will find some solution. I have HCM ( nonobstructive). Good luck but try not to settle. I am a usually healthy, active 65 yr old!