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I would like to hear your experiences with AVM and its treatments

Stroke & Cerebrovascular Diseases | Last Active: Feb 5 1:15pm | Replies (4)
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@lisalucier

Hi, @cheri53, and welcome to Mayo Clinic Connect. I can imagine feeling a lot of fear if I thought I might lose my vision. Glad your shots seem to be working to help you keep yours.

With all the acronyms in medicine, I wanted to confirm that you have been diagnosed with monomelic amyotrophy (MA)?

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Replies to "Hi, @cheri53, and welcome to Mayo Clinic Connect. I can imagine feeling a lot of fear..."
cheri53 | @cheri53 | Feb 5 1:15pm

Lisa,
I have been diagnosed with Macular Degeneration. Yesterdays appointment was another blow, now must see a glaucoma specialist.
My daughter was diagnosed with FMD- fibromuscular dysplasia. It includes a tendency to develop aneurisms, primarily cranial, but can also effect the kidneys , arms, leg and the aorta. My grandfather and his sister both passed from aortic aneurisms, but more than 50 years ago. my mom and one of her siblings had theirs repaired since we were told it was a genetic issue.
My daughters was also attributed to a 'genetic' component. My search is to see if these two issues are in anyway connected.

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