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Could we talk about anxiety with MGUS

Blood Cancers & Disorders | Last Active: Feb 11 12:55pm | Replies (30)

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@msh466

With MAGUS there are no symptoms. Wait and see approach. M proteins present but not significant. That’s the worst part of this disease. There really is nothing to do. I have SMM. Which is a step up closer to MM. Again it’s a waiting process. How do we deal with this ticking time bomb? Know that you will be tested each year or 6 months in my case. My case it’s been stable for 1 year. Catching this early in the MAGUS stage is a real good thing. You can have this condition for the rest of your life which is again a good thing. MGUS does not affect you physically. Mentally it’s a challenge. But gain the confidence that you’re on top of it. Monitoring it. There are cutting edge clinical trials available but the studies need certain criteria for you to get in. I tried to get into the Mayo trials but I am just over the threshold of MAGUS to SMM. So I did not have high enough lab values to qualify. Very few MAGUS patients ever develop SMM.

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Replies to "With MAGUS there are no symptoms. Wait and see approach. M proteins present but not significant...."

Thank you so much for your response.