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Essential Thrombocytosis symptoms
Blood Cancers & Disorders | Last Active: Feb 13 1:02am | Replies (170)Comment receiving replies
Yes you do need to stand up for yourself. I have a great GP and now a great Haematologist. Both are concerned about my health. Just a pity it took my running out of tablets to set this in motion. Hope you are well, we can do this, wish my family took it seriously. My hubby is great, I think family don't say anything, in doing so, it doesn't really exist. You look healthy so you can't have a blood cancer. Sometimes I just want them to ask ARE YOU OK MUM. Just feeling a bit down that's all. Tomorrow is another day we all need this group l, keeps it real. ❤️
Replies to "Yes you do need to stand up for yourself. I have a great GP and now..."
Yes, "how's the old fatigue level?" would be nice once in awhile, wouldn't it? And if anybody said "are you feeling tired today?" I'd fall down in a faint!
I used to talk to student nurses about dealing with chronic cancer, and I emphasized the exact point you make: We don't look or act sick, so people just assume we're fine. They don't see the extra effort it takes for us.
So true ! The HU drug has relieved some of my side effects ( still have mouth sores and fatigue ) but now manageable . I see my Oncol/Hemo doctor Monday and hopefully the platelets have decreased . You’re right about people only noticing how well you look , but only you know your body . Strokes run in my family anyway , so I am not taking any chances . So far , no side effects from Hydroxurea , but I’m only on the lowest dose (500mg) . Good luck !
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The lack of understanding, let alone compassion, is hard.
I would go crazy without this forum, the only place our alien cancer is understood.