The test results I saw 8 years ago merely said "CALR with deletion." Tests with much more info may come thru your patient portal, so a sit-down with your doc is probably in order.

It's pretty customary for doctors to want to talk thru the tests after results come back. If your doc doesn't, you might want to request a consult.

Once the doc translates what it all means, a good question to ask is how often you will need blood monitoring. (Every 3-4 months is pretty typical.) Also how often you should be seen by hemo. (Twice a year is also typical, but I talked mine down to once a year with the proviso that I would be scrupulous about meds and bloodwork.) You might also ask what are some symptoms you should report to the doc.

Take care!