So sorry about your diagnosis. I was diagnosed with Myxofibrosarcoma in back of my thigh after I couldn’t handle the pain. Chiropractor told me I had sciatica. Well the tumor was pushing on my sciatic nerve ! By the time I went to doctor re pain etc I had an mri that diagnosed the tumor as soft tissue sarcoma and biopsy revealed the kind: a high Myxofibrosarcoma 😢. Of course I went home and googled it only to end up thinking I might live months to max of 3 years My tumor was really big 9cm x12cm It was so close to nerve the surgeon had me have 5 weeks of radiation. I promptly totally lost my appetite and everything smelled and tasted different .. and not good ! I just couldn’t eat. Thought it would get better after radiation but it didn’t. I was wasting away literally ! My GP and I decided I had to have a feeding tube so with that I got better enough to have my surgery. Weirdest thing is the night after my operation my appetite , smell and taste all went back to normal !
Anyway , I just had a pet scan to see if the cancer metastasized especially to lungs. My edges were negative but I read it likes to come back I will not have chemo in IV. Would kill me Might do a chemo pill if there is one for this but I’m ready to look for opinions where there has been research or lots of experience . MDAnderson in Texas is one thought. I’m ready to fight and don’t want same ole thing that doesn’t work and just makes you sick. Any experience out there let me know ! Sally c