Gardening with Bronch and MAC

Posted by cate123456 @cate123456, Sep 2, 2022

I’ve been an organic gardener for decades. We grow most of our veggies, fruits, and flowers via our garden. Ironically I thought this kept us so healthy, but was probably a strong source of MAC for my lungs via all the composting, watering, manures, and messing w the soil.

I now try to wear an N95 mask when I garden. And my husband deals w the compost and most of the watering. I really hate the thought of having to give up our gardens and orchard.

Have you given up gardening, if not, what steps have you taken for MAC safety?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

I am also an avid Gardner and have been all my life. I also had horses for 34 years and lived next to a mushroom farm in California for 22 of those years. I'm sure I had MAC way before it was discovered 3 years ago. I do the same and now wear a mask when ever I'm doing yard work.

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@sueinmn

My ID doc told me 6 years ago that it was not necessary to stop gardening - just be smarter.
Here are the adjustments I made -
Gloves while gardening, thrown in the laundry frequently with my garden clothes. Garden clothes, gloves and shoes stay in the garage until laundered so I don't bring anything into the house.
No more peat moss, anywhere in my gardens or pots.
No more playing in dry soil - always wet it before working.
No more dumping dry soil, compost or mulch - I pay a helper to do it if my husband cannot, and stay away until it has been watered down.
No using the mower, leaf blower, or rake and staying away while it is in use. If I must do it, wear a KN-95 mask (the one where when you breathe out, a one-way valve opens to expel the moisture - much more comfortable than the N-95.)

With these precautions I have stayed NTM free in spite of hundreds of hours in the garden and working with plants.

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I wonder if a survey was done on a thread how many of us are/were soil turners most of our life would say yes to that question. Mine began as a child with helping Mother in the flower beds, much peat moss, and continues, somewhat, to this day.

I also hooked the guy into the 'love of being a soil turner' with having hired him to do most of it for me now. He acknowledged how much he enjoyed doing it and the beauty of it and then went on to building a flower bed for enjoyment elsewhere.
Spring is around the bend!
Barbara

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A lot of great comments! I also found the 3M N 95 surgical type mask it’s blue and spatter proof. Has anyone used these? I do not want to give up gardening and outside work as moved to Florida to be outside! We have a pool outside with spa that has water fall. Even though I had all water tested and no MAC is detectable, I poured 5 gallons of vinegar during spa repair to decon and bought a 425 nm UVC light which interrupts DNA of MAC . The SPA flows into pool so water is never stagnant. So between masking all the time working outside and if I go in outside spa which helps my arthritis just doing what we can and trying to be smart about it.

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@circleup

My doctor said my MAI was directly related to my gardening and i have since not exposed myself to those soil microbes. I hope it makes a difference, my yard looks like crap. LOL !

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I have MAI and am not a gardener so I don’t know how any doctor can say such a thing. Not that I don’t think we need to be careful outside under the circumstances, as usual Sue gives great tips for gardening, but it’s very hard to say how any one of us got infected. We can’t even say how long we’ve been infected. We guess, we theorize, but we don’t know.

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@bayarea58

I have MAI and am not a gardener so I don’t know how any doctor can say such a thing. Not that I don’t think we need to be careful outside under the circumstances, as usual Sue gives great tips for gardening, but it’s very hard to say how any one of us got infected. We can’t even say how long we’ve been infected. We guess, we theorize, but we don’t know.

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I think in my case it was a very logical assumption on the pulmonologist's part. I moved to a place at my winter home where there were feral chickens and many wild birds in my yard, gardened in the heavily contaminated and often dusty soil, and within 3 years had a raging case of MAC. And in addition I was an avid gardener up North, often working with peat potting soils, another big source.

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@bayarea58

I have MAI and am not a gardener so I don’t know how any doctor can say such a thing. Not that I don’t think we need to be careful outside under the circumstances, as usual Sue gives great tips for gardening, but it’s very hard to say how any one of us got infected. We can’t even say how long we’ve been infected. We guess, we theorize, but we don’t know.

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With our always being outdoors and involved with the parts of the environment directly and indirectly with all the possibilities of what is in the air from the ground up and breathing it all in, especially on a windy days, we could be breathing in bacteria from the soil, etc. or breathing in other matter to cause MAI and not realize it.

For me....first I had two serious pneumonias at the same time in the 1980's, legionella (water based) and mycoplasma (air based). A good start for BE.

As I had mentioned in another thread I specifically have three incidents just prior to what I call "the straw that broke the camels back", for me.
First, I was cleaning out the backyard bird houses and specifically said to myself, "oh my gosh you just breathed in all that dust and debris.".
Second, I opened a bag of peat moss and particles raised up and I said to myself, "you just breathed all that in".
Third, I blew the winters dry leaves away from the foundation of the house and for sure there was dust, debris and mold that I did not realize how it could be affecting me as I blew it all up and away from the foundation of the house.
All this was just before I began to having to clear a substance from my throat all day long and carrying a spit cup to the doctors office and saying something is wrong.
True I believe I had had Bronchiectasis before the three things I did above in the yard. I also believe I had a MAC infection at least three years before I was diagnosed with BE/MAI because I was having to clear my throat in the mornings only and sometimes a colored piece of mucus would come up and out. I told the doctor and he said "not a problem."

It wasn't until after doing the three things I did above that I started having to clear my throat of a substance all day long. BE diagnosed by the same doctor only after I had lost 30 lbs. and he ordered the C Scan.
So for me I do believe it was all this that finally brought me to my having to deal with, and live with, BE and the MAI.

Just as the medical field is not sure of the why and how of many things but they have come to recognize the problem and all that has to be found out....we are not 100 per cent sure of how we brought the infection into our system and fortunately they have a way of knowing it is there.
Frustrating is the word for it all and learning to take further precautions and live with it, is the key. Hope so anyway.
Barbara

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