I don’t know of one near you, but want to say I just read an article about a hospital on the west coast that is now doing several histotripsies a week with great success and has a waiting list. Just wanted to share the good news of success. The article said there are now 4 hospitals on the west coast offering histotripsy so hopefully some close to you. Best of luck. I hope you’ll post about your experience afterwards.
Also Rush University and another place in Chicago. Go into Histotripsy and locations in your zip code and it will list the ones closest to you. Good luck!
I don’t know of one near you, but want to say I just read an article about a hospital on the west coast that is now doing several histotripsies a week with great success and has a waiting list. Just wanted to share the good news of success. The article said there are now 4 hospitals on the west coast offering histotripsy so hopefully some close to you. Best of luck. I hope you’ll post about your experience afterwards.
I was operated on 5 tumors at the Swedish Hosp. in Seattle last May of 2024. Histotripsy was recently introduced and they were only able to reduce some tumors. Histotripsy is developing, and as it is a non-invasive approach but still requires anesthesia (I was put under for 7 hours), I am looking forward to when the killer bots are unleashed. (Still under trial).
I was operated on 5 tumors at the Swedish Hosp. in Seattle last May of 2024. Histotripsy was recently introduced and they were only able to reduce some tumors. Histotripsy is developing, and as it is a non-invasive approach but still requires anesthesia (I was put under for 7 hours), I am looking forward to when the killer bots are unleashed. (Still under trial).
I was told only 2 or 3 tumors would be addressed, but I was adamant about doing more, so the surgeon went for 5. I was 3rd in the world and first at Swedish to have so many done and I am 80 years old. As there are so many approaches with NET's, I took the aggressive route. We are called ZEBRAS as we are all so different.
BTW, I also eat 'fermented' black garlic daily (very mild) and listen to Beethoven's 5th (there is talk of this as reducing tumors by 25%.
I should mention that my primary (origin) started in the small bowel and metastasized into my liver. Grade 2, Stage 4. I found it by accident when I independently decided to get a full body MRI. No indication prior to checking. The results of the MRI, I was told I had 2 weeks to live and I said NOPE. This was back in March of 2023. 2 bouts of PRRT didn't work - my tumors grew. Currently on Lanreotide & Lenvima and now feeling somewhat normal.
I should mention that my primary (origin) started in the small bowel and metastasized into my liver. Grade 2, Stage 4. I found it by accident when I independently decided to get a full body MRI. No indication prior to checking. The results of the MRI, I was told I had 2 weeks to live and I said NOPE. This was back in March of 2023. 2 bouts of PRRT didn't work - my tumors grew. Currently on Lanreotide & Lenvima and now feeling somewhat normal.
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I don’t know of one near you, but want to say I just read an article about a hospital on the west coast that is now doing several histotripsies a week with great success and has a waiting list. Just wanted to share the good news of success. The article said there are now 4 hospitals on the west coast offering histotripsy so hopefully some close to you. Best of luck. I hope you’ll post about your experience afterwards.
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2 ReactionsI believe Mayo Clinic in Rochester, Mn has it.
Also Rush University and another place in Chicago. Go into Histotripsy and locations in your zip code and it will list the ones closest to you. Good luck!
Dr Eric Liu at Rocky Mountain Cancer Centers in Denver is also doing this. He is a NET surgeon.
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2 Reactionshttps://www.uchicagomedicine.org/cancer/find-a-location?sort=resulttitlesort_s+asc¤tPage=2
I was operated on 5 tumors at the Swedish Hosp. in Seattle last May of 2024. Histotripsy was recently introduced and they were only able to reduce some tumors. Histotripsy is developing, and as it is a non-invasive approach but still requires anesthesia (I was put under for 7 hours), I am looking forward to when the killer bots are unleashed. (Still under trial).
Wow, 7 hours of anesthesia! I didn’t realize the procedure took so long. Is that the reason for the 5 tumor limit?
I was told only 2 or 3 tumors would be addressed, but I was adamant about doing more, so the surgeon went for 5. I was 3rd in the world and first at Swedish to have so many done and I am 80 years old. As there are so many approaches with NET's, I took the aggressive route. We are called ZEBRAS as we are all so different.
BTW, I also eat 'fermented' black garlic daily (very mild) and listen to Beethoven's 5th (there is talk of this as reducing tumors by 25%.
-
Like -
Helpful -
Hug
2 ReactionsI should mention that my primary (origin) started in the small bowel and metastasized into my liver. Grade 2, Stage 4. I found it by accident when I independently decided to get a full body MRI. No indication prior to checking. The results of the MRI, I was told I had 2 weeks to live and I said NOPE. This was back in March of 2023. 2 bouts of PRRT didn't work - my tumors grew. Currently on Lanreotide & Lenvima and now feeling somewhat normal.
Thank you for sharing your story. You’re a fighter! 🥰