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DiscussionAcute myeloid leukemia (AML): What can I expect?
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Replies to "Would like to hear more stories of your aml journey...I too pray for remission for all..."
Each person with AML will have their own, unique story to tell. You’re just at the beginning of your story with the recent diagnosis of AML and haven’t gotten a treatment plan mapped out for yet. So if you read through some of the stories of my odyssey or other members with their AML journeys, this may not be at all what you experience.
While some of the stories may be intense, we each got through it the same way…one day at a time and life on the other side for most of us is pretty darned good!
Here’s a discussion I started a few years ago where I’m joined by a lot of friends who have gone through AML and onto having a bone marrow transplant. We don’t all need them however! We have plenty of members on medications to hold their disease in check.
When you learn your complete diagnosis and treatment plan I’ll find members who are on the same meds for you to speak with. ☺️
Anyway here’s my story:
My BMT story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
Another story published by Mayo when I had the honor of meeting a young woman and her family whom I mentored through her transplant.
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/mayo-clinic-connect-brings-together-2-women-with-leukemia-46-years-apart/
Besides mentoring on Connect I work through our local cancer center to mentor patients with AML or going on to transplant. Through that association I have developed a friendship with one of the women I mentored. She and I are as close as sisters now. She had AML, but didn’t require a transplant. Her mutations were such that she had a lower risk level of relapse. She is now 3 years post treatment of 5 rounds of chemo and doing great! Back to normal and no signs of disease. So AML runs the gamut. Life holds no guarantees so we do the best we can and enjoy the gift of life every day.